Disability Info & Links

Info and Links for:

• Advocacy
• Assistive Technology
• Benefits
• Disabilities
• Education & Transition
• Family Support
• Futures Planning
• Healthcare
• Home Care & Home Health Care
• Jobs & Work
• Legal
• Parents & Siblings
• Personal Care
• Recreation
• Transportation

Adult Family/Foster Care

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic State and Federal Services

American Association on Intellectual and Developmental Disabilities (AAIDD)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Advocacy & Self Advocacy

American Foundation for the Blind

Disability Visual Impairments

American Society for Deaf Children

Disability Deaf and Hard of Hearing

Angelman Syndrome Foundation

Disability Angelman Syndrome

Asperger/Autism Network (AANE)

Disability Autism

Association of People Supporting Employment First (APSE)

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Jobs

Autism Commission Transition Guides

Age Range School Age (4-22), Transition Age (14-26)

Topic Transition

Autism Home and Community-Based Services (HCBS) Waiver Program

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic State and Federal Services

Autism Now! – The Arc of the United States

Age Range School Age (4-22), Transition Age (14-26)

Topic Transition

Autism Society of America

Disability Autism

Autism Speaks

Disability Autism

Autism Speaks Transition Guide – (.pdf)

Age Range School Age (4-22)

Topic Transition

Autism Support Centers

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic State and Federal Services

Benefits for Children with Disabilities (.pdf)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26)

Topic State and Federal Services

Brain Injury Association of America (BIAA)

Disability Brain Injury

Brain Injury Association of Massachusetts

Disability Brain Injury

Brain Trauma Foundation

Disability Brain Injury

CdLS Foundation

Disability Cornelia de Lange Syndrome

Center for Public Representation (CPR)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Civil Rights

Cerebral Palsy Foundation

Disability Cerebral Palsy

Charting The LifeCourse

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Family Support

Communicating with an Autistic Child: A Parent’s Guide

Disability Autism

Cronología para la Transición

Age Range Transition Age (14-26)

Topic Transition

D.E.A.F. Inc.

Disability Deaf and Hard of Hearing

DDS DESE Program

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26)

Topic State and Federal Services

DDS Eligibility Fact Sheet (.pdf)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic State and Federal Services

DDS Family Support

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic State and Federal Services

DDS Family Support Services Information

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Family Support, State and Federal Services

Department of Developmental Services (DDS)

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Jobs

Department of Mental Health (DMH): Services for Adults Over 19

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic State and Federal Services

Department of Mental Health (DMH): Services for Children Under 19

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26)

Topic State and Federal Services

Department of Public Health (DPH): Division for Children & Youth with Special Health Needs

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26)

Topic State and Federal Services

Department of Transitional Assistance (DTA)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic State and Federal Services

Disabilities and Faith

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+)

Topic Family Support

Disability Law Center (DLC)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Civil Rights

Disability Law Center’s “Planning for Life After Special Education”: A Transition Services Online Manual (.pdf)

Age Range School Age (4-22), Transition Age (14-26)

Topic Transition

Disabled Persons Protection Commission (DPPC)

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Civil Rights

Doug Flutie, Jr. Foundation for Autism

Disability Autism

Down Syndrome Support & Play Groups

Disability Down Syndrome

Easter Seals Project ACTION (Accessible Community Transportation In Our Nation)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Transportation

Epilepsy Foundation

Disability Epilepsy

Epilepsy Foundation New England

Disability Epilepsy

Family TIES of Massachusetts

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26)

Topic Family Support

Family Ties Resource Guide

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26)

Topic Family Support

Finding Transportation in Massachusetts

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Transportation

First Signsg

Disability Autism

Fragile X Research Foundation

Disability Fragile X

HMEA’s Autism Advantage @ Work

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Jobs

Institute for Community Inclusion (ICI)

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Jobs

Intensive Flexible Family Support Programs

Age Range Transition Age (14-26)

Topic State and Federal Services

International League Against Epilepsy

Disability Epilepsy

Job Accommodation Network (JAN)

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Jobs

Learning Disabilities Association of America

Disability Learning Disabilities

Living & Working with a Disability: Tax Benefits & Credits (.pdf)

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Jobs

Local: P-W Syndrome Association of New England

Disability Prader-Willi Syndrome

Mass Advocates: Transition tools

Age Range School Age (4-22), Transition Age (14-26)

Topic Transition

Mass Commission for the Blind

Disability Visual Impairments

Mass. Bay Transit Authority (MBTA)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Transportation

Massachusetts Advocates for Children (MAC)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26)

Topic Civil Rights

Massachusetts Advocates Standing Strong (MASS)

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Advocacy & Self Advocacy

Massachusetts Association for Mental Health

Disability Mental Illness

Massachusetts Commission Against Discrimination (MCAD)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Civil Rights

Massachusetts Commission for the Blind (MCB)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic State and Federal Services

Massachusetts Commission for the Deaf and Hard of Hearing

Disability Deaf and Hard of Hearing

Massachusetts Commission for the Deaf and Hard of Hearing (MCDHH)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic State and Federal Services

Massachusetts Developmental Disabilities Council (MDDC)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Advocacy & Self Advocacy

Massachusetts Developmental Disabilities Council (MDDC) Consumer Empowerment Funds

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Family Support

Massachusetts Down Syndrome Congress

Disability Down Syndrome

Massachusetts Down Syndrome Congress (MDSC)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Family Support

Massachusetts Families Organizing for Change (MFOFC)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Advocacy & Self Advocacy, Transition

Massachusetts Office on Disability (MOD)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Civil Rights

MassAbility

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic State and Federal Services

Massachusetts Sibling Support Network (MSSN)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Family Support

MassHealth (Massachusetts’ Medicaid Program)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Healthcare, State and Federal Services

MassOptions

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+)

Topic Family Support

MBTA Travel Training

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Transportation

Medically Complex Programs

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26)

Topic State and Federal Services

Medicare

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic State and Federal Services

NAMI Mass

Disability Mental Illness

National Alliance on Mental Illness (NAMI)

Disability Mental Illness

National Association for Down Syndrome

Disability Down Syndrome

National Center for Learning Disabilities

Disability Learning Disabilities

National Down Syndrome Congress

Disability Down Syndrome

National Down syndrome Society

Disability Down Syndrome

National Federation for the Blind

Disability Visual Impairments

National Federation for the Blind Mass

Disability Visual Impairments

National Fragile X Foundation

Disability Fragile X

National Organization for Rare Disorders (NORD)

Disability Rare Disorders

National Organization on Fetal Alcohol Syndrome

National Secondary Transition Technical Assistance Center (NSTTAC)

Age Range School Age (4-22), Transition Age (14-26)

Topic Transition

New England ADA & Accessible IT Center

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Civil Rights

Office of Special Education Planning & Policy Development (SEPP) Secondary Transition

Age Range School Age (4-22), Transition Age (14-26)

Topic Transition

One-Stop Career Centers

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Jobs

PACER Center

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26)

Topic Family Support

Parent to Parent

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Family Support

Partners for Youth with Disabilities (PYD)

Age Range School Age (4-22), Transition Age (14-26)

Topic Transition

Perkins School for the Blind

Disability Visual Impairments

Personal Care Attendant (PCA) Program (.pdf)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Home Health & Personal Care

Prader-Willi Syndrome Association

Disability Prader-Willi Syndrome

Q&A on Job Applicants and the Americans with Disabilities Act

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Work

Rett Syndrome Association of Massachusetts

Disability Rett Syndrome

RettSyndrome.org

Disability Rett Syndrome

Rewarding Work

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Family Support

Riding the T – Accessible Services

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Transportation

Self-Determination-Making Your Choices Count

Age Range School Age (4-22), Transition Age (14-26)

Topic Transition

Sesame Street and Autism: See Amazing in All Children

Disability Autism

Specialized Driver’s Education Programs

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Transportation

SPED Child and Teen

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26)

Topic Family Support

Spina Bifida Association

Disability Spina Bifida

Spina Bifida Association of Greater New England

Disability Spina Bifida

Spina Bifida Resource Center

Disability Spina Bifida

Supplemental Security Income (SSI) and Social Security Disability (SSDI)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Benefits

The ADA & Your Employment Rights as an Individual with a Disability

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Jobs

The Americans with Disabilities Act (ADA)

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Advocacy

The Arc of Massachusetts Legislative Advocacy Training

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Advocacy & Self Advocacy

The Arc of the United States on Spirituality

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+)

Topic Family Support

The Arc of the United States: Civil Rights Issues

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Advocacy

The Arc@Work

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Work

The Beach Center on Disability

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Family Support

The Carroll Center For the Blind

Disability Visual Impairments

The International 22q11.2 Foundation

Disability 22q Deletion Syndrome

Disability 22q Deletion Syndrome

Disability 22q Deletion Syndrome

The National Autism Resource and Information Center – A collaboration hosted by The Arc

Disability Autism

The National Research Center for Parents with Disabilities

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Family Support

The Road Forward Transition Guide

Age Range School Age (4-22), Transition Age (14-26)

Topic Transition

The Sibling Leadership Network

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Family Support

The Sibling Support Project

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Family Support

The Smith-Magenis Foundation

Disability Smith-Magenis Syndrome

Tips on Preparing for 22

Age Range School Age (4-22), Transition Age (14-26)

Topic Transition

Transition Coalition

Age Range School Age (4-22), Transition Age (14-26)

Topic Transition

Transition from School to Adult Life – Time Lines

Age Range Transition Age (14-26)

Topic Transition

United Arc Positive Parenting Resource Center

Age Range Early Childhood (0-5), School Age (4-22), Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Family Support

United Cerebral Palsy

Disability Cerebral Palsy

Unsure of Diagnosis

Disability Disabilities

Williams Syndrome Association

Disability Williams Syndrome

World Federation of CdLS Support Groups

Disability Cornelia de Lange Syndrome

Youth Employment Solutions (YES) Center

Age Range Transition Age (14-26), Adulthood (18+), Aging (50+)

Topic Jobs