Chromosome 9p Minus Network

Record last updated 2019/06/14 Comment on this info .Update this info

Contact Information

Chromosome 9p Minus Network
Chromosome 9p Minus Network
Email Address: Membership-Services@9pminus.org
Phone: 920-931-2644

PO BOX 15484 Baton Rouge, LA 12486
Area Served: Out of State

Map Location Chromosome 9p Minus Network

Narrative

This nonprofit organization links families to resources and hosts an annual event for Monosomy 9P, otherwise known as Alfi's Syndrome or 9P-, a rare chromosome anomaly.

Service Types

  • Family Support

Program Type

  • Advocacy
  • Information/Referral
  • Support Groups

Populations Served

  • Chromosome Disorders
  • Rare disorders/low incidence

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Additional Information

  • Fees: Free Service