Chromosome 9p-Network

Record last updated 2017/02/13 Comment on this info .Update this info

Contact Information

Chromosome 9p-Network
Chromosome 9p-Network
Email Address: Membership-Services@9pminus.org
Phone: (920) 931-2644

PO Box 71 Tillson, NY 12486
Area Served: Out of State

Map Location Chromosome 9p-Network

Narrative

This nonprofit organization links families to resources and hosts an annual event for Monosomy 9P, otherwise known as Alfi's Syndrome or 9P-, a rare chromosome anomaly.

Program Type

  • Advocacy
  • Information/Referral
  • Support Groups

Populations Served

  • Chromosome Disorders
  • Rare disorders/low incidence

Ages Served

  • 14 - 18
  • 19 – 22
  • 23 – 59
  • 3 - 4
  • 5 - 8
  • 60 +
  • 9 - 13
  • Birth to 3

Additional Information

  • Fees: Free Service