The Ehlers-Danlos Society

Record last updated 2018/08/28 Comment on this info .Update this info

Contact Information

The Ehlers-Danlos Society
Contact: Shani Weber, Patient and Community Advisor
Email Address: ednstaff@ednf.org
Phone: (703) 506-2892
Fax: (703) 506-3266

7918 Jones Branch Drive, Suite 300 McLean, VA 22102
Area Served: Out of State

Map Location The Ehlers-Danlos Society

Narrative

Creates and shares resources, provides support, shares knowledge and funds research for those affected by the connective tissue disorder Ehlers-Danlos Syndrome.

Program Type

  • Information/Referral
  • Support Groups

Populations Served

  • Ehlers-Danlos Syndrome
  • Rare disorders/low incidence

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Additional Information

  • Fees: Free Service