The Ehlers-Danlos Society Ehlers-Danlos National Foundation

Record last updated 2017/03/13 Comment on this info .Update this info

Contact Information

Ehlers-Danlos National Foundation
Contact: Jessica Adelman, Program Manager
Email Address: ednstaff@ednf.org
Phone: (703) 506-2892
Fax: (703) 506-3266

7918 Jones Branch Drive, Suite 300 McLean, VA 22102
Area Served: Out of State

Map Location The Ehlers-Danlos Society

Narrative

Creates and shares resources, provides support, shares knowledge and funds research for those affected by the connective tissue disorder Ehlers-Danlos Syndrome.

Program Type

  • Information/Referral
  • Support Groups

Populations Served

  • Ehlers-Danlos Syndrome

Ages Served

  • 14 - 18
  • 19 – 22
  • 23 – 59
  • 3 - 4
  • 5 - 8
  • 60 +
  • 9 - 13
  • Birth to 3

Additional Information

  • Fees: Free Service