Pierre Robin Network

Record last updated 2018/10/04 Comment on this info .Update this info

Contact Information

Pierre Robin Network
Pierre Robin Network
Email Address: info@pierrerobin.org
Phone: 217-224-0698

3604 Biscayne Quincy, MA 62305
Area Served: Greater Boston

Map Location Pierre Robin Network

Narrative

10/4/18 - website down

 

The Pierre Robin Network was formed in May of 1999 by the mother of a son with Pierre Robin syndrome, which is characterized by a small lower jaw, displaced tongue, and cleft soft palate. The organization is made up of parents, relatives, caregivers, adults with PRS and professionals who have an interest in PRS. The purpose is to network families and individuals with PRS and provide information to anyone who has an interest. Parents and caregivers do not need to feel alone: having a child with PRS can be overwhelming. There are many issues associated with PRS, which are unique to PRS.

Program Type

  • Advocacy
  • Information/Referral
  • Support Groups

Populations Served

  • Birth Defects
  • Cleft Lip & Palate

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Additional Information

  • Fees: Free Service