National Headquarters SOFT

Record last updated 2017/03/10 Comment on this info .Update this info

Contact Information

SOFT
Contact: Barb Vanherreweghe, Support Staff
Email Address: barbsoft@rochester.rr.com
Phone: (585) 594-4621
Alternate Phone: (800) 716-7638

2982 South Union Street Rochester, NY 14624
Area Served: Out of State

Map Location National Headquarters

Narrative

Support organization for Trisomy 18, 13, and related disorders; offers support for parents who have children with chromosome disorder and education to families and professionals.

Program Type

  • Information/Referral
  • Support Groups

Populations Served

  • Genetic Disorders

Ages Served

  • 14 - 18
  • 19 – 22
  • 23 – 59
  • 3 - 4
  • 5 - 8
  • 60 +
  • 9 - 13
  • Birth to 3

Additional Information

  • Fees: Free Service