National Headquarters SOFT Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)

Record last updated 2018/08/17 Comment on this info .Update this info

Contact Information

Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)
Contact: Barb Vanherreweghe, Support Staff
Email Address: barbsoft@rochester.rr.com
Phone: (585) 594-4621
Alternate Phone: (800) 716-7638

2982 South Union Street Rochester, NY 14624
Area Served: Out of State

Map Location National Headquarters SOFT

Narrative

Support organization for Trisomy 18, 13, and related disorders; offers support for parents who have children with chromosome disorder and education to families and professionals.

Program Type

  • Information/Referral
  • Support Groups

Populations Served

  • Genetic Disorders

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Additional Information

  • Fees: Free Service