Support Groups Cornelia de Lange Syndrome Foundation

Record last updated 2017/01/31 Comment on this info .Update this info

Contact Information

Cornelia de Lange Syndrome Foundation
Contact: Bonnie Royster, Executive Director
Email Address: director@cdlsusa.org
Phone: 800 223-8355
Alternate Phone: 860 676-8166
Fax: 860 676-8255

302 West Main Street, Suite 100 Avon, CT 06001
Area Served: Out of State

Map Location Support Groups

Narrative

An organization dedicated to early and accurate diagnosis of Cornelia de Lange Syndrome Foundation and helping families, friends and professionals  caring for individuals with the syndrome. Publishes written materials and quarterly newsletter; toll-free line; biennial conference; and annual meetings for parents. (800)-753-2357; www.cdlsusa.org

Program Type

  • Communication
  • Counseling
  • Support Groups

Populations Served

  • Other See Narrative

Ages Served

  • 14 - 18
  • 19 – 22
  • 23 – 59
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • Birth to 3

Additional Information