United Leukodystrophy Foundation United Leukodystrophy Foundation, Inc.

Record last updated 2017/03/15 Comment on this info .Update this info

Contact Information

United Leukodystrophy Foundation, Inc.
Contact: Bobbi Burgstone, Executive Director
Email Address: office@ulf.org
Phone: (815) 748-3211
Alternate Phone: (800) 728-5483
Fax: (815) 748-0844

224 North Second Street, Suite 2 DeKalb, IL 60115
Area Served: Out of State

Map Location United Leukodystrophy Foundation


Provides patients and family with information about diseases and identifying resources at the same time that promotes education and research about Leukodystrophy.

Program Type

  • Information/Referral
  • Support Groups

Populations Served

  • Leukodystrophy
  • Rare disorders/low incidence

Ages Served

Additional Information

  • Fees: Free Service