The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving the success of children and youth with disabilities and/or gifts and talents. CEC advocates for appropriate governmental policies, sets professional standards, provides professional development, and helps professionals obtain conditions and resources necessary for effective professional practice. CEC is known as THE source for information,… Continue Reading Information and Resources [...]
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Information and Resources
Raises awareness, provides education and support to those affected by cyclic vomiting, abdominal migraine, and related disorders. Cyclic Vomiting Syndrome Association (CVSA) Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Milwaukee cvsa@cvsaonline.org 414-342-8980 414-342-7880 18689 Information and Resources Information/Referral,… Continue Reading Information and Resources [...]
Information and Resources
As a national technical assistance center, the National Center on Deaf-Blindness works with state deaf-blind projects. We work with other partners to improve educational results and quality of life for children who are deaf-blind and their families. NCDB and the state deaf-blind projects exist to help increase the knowledge and skills of teachers and… Continue Reading Information and Resources [...]
Information and Support
The most important step in managing your congenital heart disease (CHD) is to know the name of your defect, know what it means, and be able to find the recommended doctors and care options. The Adult Congenital Heart Association’s Clinic Directory Health information, Heart to Heart Peer Support Program Research can help. Adult Congenital… Continue Reading Information and Support [...]
Information and Support
Offers an info guide, publications and videos on topics related to allergies and asthma. Has a quarterly newsletter. Also maintains a doctor referral line. Has National Allergy Bureau for accurate pollen count and mold levels. Has a Find an Allergist tool and a pollen count tool. American Academy of Allergy, Asthma & Immunology Birth… Continue Reading Information and Support [...]
Information and Support
The American Autism Association provides families impacted by autism with informational resources, educational workshops, and therapeutic recreational programs. American Autism Association Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + New York info@myautism.org 877-654-4483 18536 Information and Support Advocacy, Information/Referral,… Continue Reading Information and Support [...]
Information and Support
Coordinates meetings, speakers, parent-to-parent visitation, summer camps, transportation, emergency funding, and publications. We are a community of families, survivors, and friends who have been affected by childhood and adolescent cancer. We offer our community support, information, advocacy. We are their voice. American Childhood Cancer Organization 3 – 4, 5 – 8, 9 – 13,… Continue Reading Information and Support [...]
Information and Support
Promotes education, supports research, advocates on behalf of people with liver disease, family members and caregivers. Contact info@liverfoundation.org for info. American Liver Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + West Orange Warren Hall info@liverfoundation.org 212-483-8179 212-668-1000 800-465-4837… Continue Reading Information and Support [...]
Information and Support
Organization for persons and families with nystagmus; offers peer support and education, guidance, counseling, college scholarships, internships, and annual conference. American Nystagmus Network (ANN) Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Decatur webmaster@nystagmus.org 18552 Information and Support Advocacy,… Continue Reading Information and Support [...]
Information and Support
Works to improve the lives of people with syringomyelia, Chiari malformations, and related disorders. Publishes a newsletter and offers videotapes, a conference, and support groups. American Syringomyelia and Chiari Alliance Project Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 +… Continue Reading Information and Support [...]
