Trusted Parents is an all inclusive 501(c)3 non profit organization that focuses on the wellbeing of parents and caregivers of special need children. Our mission is to empower a special community of parents and caregivers with support, services, awareness, and assistance that will help enhance their lives and the lifestyle of their loved ones… Continue Reading Information and Support [...]
Archives: Posts
Information and Support
Information and support for patients diagnosed with acoustic neuroma and other benign tumors of the cranial nerves. Acoustic Neuroma Association Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Cumming Melissa Baumbick info@anausa.org 770-205-0239 770-205-8211 877-200-8211 4396 Information and Support… Continue Reading Information and Support [...]
Information and Support
Provides educational and management information about diabetes. We have referrals and information about programs for people with diabetes. American Diabetes Association Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Alexandria askada@diabetes.org 800-342-2383 22463 Information and Support Advocacy, Information/Referral,… Continue Reading Information and Support [...]
Information and Support
Offers information and medical research. We have a national family conference, on ichthyosis and related disorders. Also offers financial assistance. Foundation for Ichthyosis and Related Skin Types, Inc. (FIRST) Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Lansdale Lisa… Continue Reading Information and Support [...]
Information and Support
FACES assists families with travel to major medical centers where specialized craniofacial teams provide the safest and most advanced treatment for building a face and skull. FACES, along with Face Equality International, of which FACES is a founding member, provides information and education to increase public understanding of craniofacial differences. FACES provides free and… Continue Reading Information and Support [...]
Information and Support
The International Rett Syndrome Foundation (IRSF) was established in July 2007 with a mission to fund research for treatments and a cure for Rett syndrome. We can enhance the overall quality of life for those living with Rett syndrome. IRSF coordinates, cultivates, accelerates, and funds research that will produce a cure for Rett syndrome.… Continue Reading Information and Support [...]
Information and Support
The Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, and emotional support. The foundation offers a networking list, newsletter, and a biennial conference. The Joubert Syndrome & Related Disorders Foundation plays an important role in educating doctors and their support teams as well as increasing public… Continue Reading Information and Support [...]
Information and Support
Dedicated to enhancing the quality of life for all individuals with learning disabilities and their families through advocacy, education, research and service. Learning Disabilities Association of America 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Pittsburgh Cindy Cipoletti info@ldaamerica.org 412-344-0224 412-341-1515 18839… Continue Reading Information and Support [...]
Information and Support
The NFED empowers and connects individuals and families affected by ectodermal dysplasias through education, support, and research. We provide regional and national resources, including educational publications and newsletters, to help families navigate their journey. Our financial assistance program helps eligible families access essential medical and dental care. Additionally, we support research efforts to advance… Continue Reading Information and Support [...]
Information and Support
Focuses on issues important to military families including child care, health care, spouse employment, secure retirement, and support for widows and widowers. National Military Family Association Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Alexandria Becca Garrison info@MilitaryFamily.org 703-931-4600… Continue Reading Information and Support [...]
