Answers questions on a broad range of topics: educational rights, treatment options, diagnostic procedures, and locating support and services. Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Lanham Sarah Brown customer_service@chadd.org 800-233-4050 18954 Information and… Continue Reading Information and Support [...]
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Information and Support
Dedicated to the identification, treatment, and cure of urea cycle disorders, providing information and education for families and healthcare professionals. National Urea Cycle Disorders Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Pasadena info@nucdf.org 626-578-0823 626-578-0833 800-386-8233 18962… Continue Reading Information and Support [...]
Information and Support
Supports research, education, awareness, and mutual support through local network groups, chatrooms, e-newsletter, and comprehensive Information Center on website. Osteogenesis Imperfecta Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Gaithersburg Michael Stewart mstewart@oif.org 301-947-0456 301-947-0083 800-981-2663 18981 Information… Continue Reading Information and Support [...]
Information and Support
Archived 8/22/24 BAS. Organization closed as of 1/24. Assists the families of children living with hepatitis, HIV/AIDS, or other chronic viral diseases by offering emotional, financial, and informational support. PKIDS also provides a moderated kids and teen listserve. Parents of Kids with Infectious Diseases Birth to 3, 3 – 4, 5 – 8, 9… Continue Reading Information and Support [...]
Information and Support
WHAT WE DO: Raising awareness and providing support. Encouraging and empowering those impacted by Anorectal Malformations and Hirschsprung Disease for over 30 years We support families from initial diagnosis of these rare disorders through adulthood. We help families with their medical journey, through ostomy care, incontinence and bowel management issues, school and social issues. Pull-thru… Continue Reading Information and Support [...]
Information and Support
Dedicated to improve the level of understanding, diagnosis and treatment of Tarlov cysts. Resources for patients and families. Tarlov Cyst Disease Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Knoxville Sandy Roof sandyproof@tarlovcystfoundation.org 865-577-4945 19070 Information and Support… Continue Reading Information and Support [...]
Information and Support
Dedicated to finding a cure for Tuberous Sclerosis while improving the lives of those affected; offers information and resources with online support and in-person support groups. Tuberous Sclerosis Alliance Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Silver Spring… Continue Reading Information and Support [...]
Information and Support
Local supports and information shared by parents of children with Down Syndrome. Has support group meetings organized at least three times a year. We offer all ages play groups for toddlers and school age children. We also have social activities for teen members. The DSRGWM offers scholarships to its members on a first come/need… Continue Reading Information and Support [...]
Information and Support
Helps and supports parents of children with mosaic Down syndrome in meeting new people and research. The website includes education, support, and Family Connect, an online parent-to-parent program. Annual meet ups at their R&R Research and Retreat Weekends. International Mosaic Down Syndrome Association Birth to 3, 3 – 4, 5 – 8, 9 –… Continue Reading Information and Support [...]
Information and Support
Info & referral Childcare & youth enrichment Family support Wheelchair Ramps, Accessible Parking, Accessible Restrooms, Near Public Transportation Monomoy Community Services Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Chatham info@monomoy.org 508-945-3737 508-945-1501 508-945-1117 2182 Information and Support… Continue Reading Information and Support [...]
