Raises awareness, allowing more children to be properly diagnosed. Supports parents who have children with fragile X: publications, listserv via email. Subscribe to email updates (free) at fraxa.org FRAXA Research Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 +… Continue Reading Information and Support [...]
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Advances awareness and treatment of Angelman Syndrome through education, information and support for individuals with Angelman Syndrome, their families and concerned parties. Provides resources specific to the region. They also host fundraising events allowing families to connect with each other. Alternate email: shibvonsargent@gmail.com Angelman Syndrome Foundation (ASF) Birth to 3, 3 – 4, 5… Continue Reading Information and Support [...]
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Provide services to New England, including Rhode Island and New Hampshire and surrounding communities. Sponsors programs of education, referral and support for people with lupus, their families, doctors, and the general public. Provide support groups in the New England area. Lupus Foundation of New England 9 – 13, 14 – 18, 19 – 22,… Continue Reading Information and Support [...]
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Vietnamese American Civic Association, Inc. aims to promote and support family self-sufficiency and well-being, and to facilitate community empowerment amongst the Vietnamese population of Boston and Greater Boston. Elevators, Accessible Parking, Accessible Restrooms Vietnamese American Civic Association 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60… Continue Reading Information and Support [...]
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Connects patients, families, friends and caregivers for support, education, advocacy, outreach, and research. We have a variety of resources and programs for gastrointestinal motility disorders. Association of GastroIntestinal Motility Disorders Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Lexington… Continue Reading Information and Support [...]
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WonderBaby.org works to help parents of young children with visual impairments as well as children with multiple disabilities. You’ll find a database of articles written by parents who want to share with others what they’ve learned about playing with and teaching a blind child. We have links to meaningful resources and ways to connect with… Continue Reading Information and Support [...]
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Dedicated to improving the lives of children with craniofacial conditions, including cleft lip, cleft palate, and other head and facial differences. Foundation for Faces of Children (FFC) Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18 Brookline Monir Sakha info@facesofchildren.org 617-355-8299 18746 Information and Support Advocacy, Information/Referral, Support… Continue Reading Information and Support [...]
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Education, support, information, coaching, community, and advocacy for individuals with Asperger/autism/neurodiverse profiles of all ages and their families. We have support groups, social groups, conferences, webinars and coaching. Free and fee for service programs and services. Elevators, Accessible Restrooms, Near Public Transportation Association for Autism and Neurodiversity (AANE) Birth to 3, 3 – 4,… Continue Reading Information and Support [...]
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LDW offers conferences, information, educational programs, & supports legislation on behalf of this population. We publish an Online Service Directory (visit http://www.ldyellowpages.org ) where people can find help for approriate services. Publishes two peer-reviewed journals, Learning Disabilities: A Contemporary Journal for teachers. The other journal, Insights on Learning Disabilities, is for parents and teachers.… Continue Reading Information and Support [...]
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Provides and promotes speech communication training for children and adults with hearing loss. Covers Boston, Metrowest, North Suburban Elevators, Accessible Parking, Accessible Restrooms, Able to serve clients in their wheelchair Hearing Rehabilitation Foundation 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Woburn… Continue Reading Information and Support [...]
