NeedyMeds is a national non-profit. We are a comprehensive and reliable source of information on assistance programs available for people having difficulties paying for health care. The website (http://www.needymeds.org) is visited by 10,000-14,000 people each work day. Needymeds information is always free, easy to access, and updated regularly. Unlike similar sites, Needymeds requires no… Continue Reading Information and Referral for Lower Cost Care and Meds [...]
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A rare genetic disease patient advocacy organization centered on increasing rare disease awareness public and doctor education building community supporting research Global Genes Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Aliso Viego Hira Chowdhary 949-248-7273 18764 Information and… Continue Reading Information and Resources [...]
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Dedicated to supporting ongoing medical research for myotubular myopathy and other related congenital myopathies and families lacking the resources for medical equipment. Joshua Frase Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22 Ponte Verde Beach Alison Rockett Frase info@joshuafrase.org 904-273-9818 904-607-1358 18826 Information… Continue Reading Information and Resources [...]
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Dedicated to the support of research for the study of early onset bipolar disorder. Offers information and resources for families. Diagnostic Criteria 1) Episodic and Abrupt Transitions in Mood States 2) Fear of Harm 3) Thermoregulatory Disturbance 4) Aggression 5) Sleep/Wake Disturbances 6) Symptoms Are Not Due to a General Medical Condition 7) A… Continue Reading Information and Resources [...]
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Our mission is to be a peer guided supportive and safe place, for those living with Lyme Disease, and their care partners. We share ways and resources for living well. We are an all volunteer 501(c)(3) organization founded in October of 2013. All of our services are provided free of charge. Our income is… Continue Reading Information and Resources [...]
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TBI is the leading cause of death and disability in children and adults ages 1 to 44. Improves the outcome of patients worldwide by developing best practices, conducting research, and educating medical professionals and consumers. Brain Trauma Foundation (BTF) Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18,… Continue Reading Information and Resources [...]
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The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving the success of children and youth with disabilities and/or gifts and talents. CEC advocates for appropriate governmental policies, sets professional standards, provides professional development, and helps professionals obtain conditions and resources necessary for effective professional practice. CEC is known as THE source for information,… Continue Reading Information and Resources [...]
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Raises awareness, provides education and support to those affected by cyclic vomiting, abdominal migraine, and related disorders. Cyclic Vomiting Syndrome Association (CVSA) Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Milwaukee cvsa@cvsaonline.org 414-342-8980 414-342-7880 18689 Information and Resources Information/Referral,… Continue Reading Information and Resources [...]
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As a national technical assistance center, the National Center on Deaf-Blindness works with state deaf-blind projects. We work with other partners to improve educational results and quality of life for children who are deaf-blind and their families. NCDB and the state deaf-blind projects exist to help increase the knowledge and skills of teachers and… Continue Reading Information and Resources [...]
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The most important step in managing your congenital heart disease (CHD) is to know the name of your defect, know what it means, and be able to find the recommended doctors and care options. The Adult Congenital Heart Association’s Clinic Directory Health information, Heart to Heart Peer Support Program Research can help. Adult Congenital… Continue Reading Information and Support [...]
