Offers an info guide, publications and videos on topics related to allergies and asthma. Has a quarterly newsletter. Also maintains a doctor referral line. Has National Allergy Bureau for accurate pollen count and mold levels. Has a Find an Allergist tool and a pollen count tool. American Academy of Allergy, Asthma & Immunology Birth… Continue Reading Information and Support [...]
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Information and Support
The American Autism Association provides families impacted by autism with informational resources, educational workshops, and therapeutic recreational programs. American Autism Association Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + New York info@myautism.org 877-654-4483 18536 Information and Support Advocacy, Information/Referral,… Continue Reading Information and Support [...]
Information and Support
Coordinates meetings, speakers, parent-to-parent visitation, summer camps, transportation, emergency funding, and publications. We are a community of families, survivors, and friends who have been affected by childhood and adolescent cancer. We offer our community support, information, advocacy. We are their voice. American Childhood Cancer Organization 3 – 4, 5 – 8, 9 – 13,… Continue Reading Information and Support [...]
Information and Support
Promotes education, supports research, advocates on behalf of people with liver disease, family members and caregivers. Contact info@liverfoundation.org for info. American Liver Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + West Orange Warren Hall info@liverfoundation.org 212-483-8179 212-668-1000 800-465-4837… Continue Reading Information and Support [...]
Information and Support
Organization for persons and families with nystagmus; offers peer support and education, guidance, counseling, college scholarships, internships, and annual conference. American Nystagmus Network (ANN) Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Decatur webmaster@nystagmus.org 18552 Information and Support Advocacy,… Continue Reading Information and Support [...]
Information and Support
Works to improve the lives of people with syringomyelia, Chiari malformations, and related disorders. Publishes a newsletter and offers videotapes, a conference, and support groups. American Syringomyelia and Chiari Alliance Project Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 +… Continue Reading Information and Support [...]
Information and Support
The International 22q11.2 Foundation mission is to improve the quality of life for indivials affected by the 22q11.2 differences through family and professional partnerships. Over the last twenty years, the foundation has been successful helping thousands of families through creating awareness days, building a website, supporting research, and engaging with other support groups to… Continue Reading Information and Support [...]
Information and Support
ADAA’s promise is to raise awareness about the impact of mental health on physical health. We work to find new treatments, and one day prevent and cure anxiety, depression, OCD, PTSD, and co-occurring disorders. Anxiety and Depression Association of America (ADAA) 14 – 18, 19 – 22, 23 – 59, 60 + Silver Spring… Continue Reading Information and Support [...]
Information and Support
Provides understanding and moral support for family members and anyone who has the diagnosis. Offers conferences, meetings, studies, online forum, and information in English and Spanish. Arthrogryposis Multiplex Congenita Support, Inc. Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 +… Continue Reading Information and Support [...]
Information and Support
Support and networking for families of kids with Batten Disease. Children and adults with Batten disease have inherited genetic material from their parents that may take some years to come to bear in their everyday lives. And when it does, families are often in shock when they learn how a normal child or adult… Continue Reading Information and Support [...]
