Barth Syndrome Foundation2005 Palmer Avenue #1033, Larchmont, NY 10538Phone: 914-303-6323 Alternate Phone: 855-662-2784 Record last updated on 12/20/2024 [...]
Ages Served: 19 – 22
19 – 22
Family Services and Advocacy
National Tay-Sachs & Allied Diseases Association2001 Beacon Street Suite 204, Boston, MA 02135Phone: 617-277-4463 Record last updated on 02/12/2026 [...]
Family Support
Haitian American Public Health Initiatives (HAPHI)1601-1603 Blue Hill Avenue PO Box 260386, Mattapan, MA 02126Phone: 617-298-8076 Record last updated on 01/21/2026 [...]
Family Support
Costello Syndrome Family NetworkP O Box 1327, Black Mountain, NC 28711Phone: 850-832-4055 Record last updated on 12/17/2024 [...]
Family Support Advocacy Groups
National Alliance for the Mentally Ill (NAMI)331 Montvale Avenue, Woburn, MA 01801Phone: 617-580-8541 Record last updated on 12/23/2024 [...]
Family Support and Information
Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)2982 South Union Street , Rochester, NY 14624Phone: 585-594-4621 Record last updated on 12/26/2024 [...]
Family Support and Resources
National Organization for Disorders of the Corpus Callosum PBM 363 18032-C Lemon Drive, Yorba Linda, 92886Phone: 714-747-0063 Record last updated on 08/02/2024 [...]
Family Support Center
Multicultural Community Services (MCS) of the Pioneer Valley 1000 Wilbraham Road , Springfield, MA 01109Phone: 413-782-2500 Record last updated on 04/02/2026 [...]
Family Support Center
Family Empowerment 11 Village Hill Road, Northampton, MA 01060Phone: 413-585-8010 Record last updated on 12/08/2025 [...]
Family Support Center – Holyoke
Multicultural Community Services (MCS) of the Pioneer Valley 260 Westfield Road, Holyoke, MA 01040Phone: 413-534-3299 Record last updated on 04/02/2026 [...]
