Chromosome 9p Minus NetworkPO BOX 15484, Baton Rouge, LA 12486 Record last updated on 04/30/2024 [...]
Ages Served: 5 - 8
5 – 8: Grades K-2
Information and Support
Dandy-Walker Alliance10325 Kensington Parkway Suite 384, Kensington, MD 20895Phone: 877-326-3992 Record last updated on 12/18/2024 [...]
Information and Support
Dravet Syndrome Foundation, Inc.PO Box 3026, Cherry Hill, NJ 08034Phone: 203-392-1955 Record last updated on 07/02/2024 [...]
Information and Support
Foundation for Ichthyosis and Related Skin Types, Inc. (FIRST)PO Box 1067, Lansdale, PA 19446-0687Phone: 215-997-9400 Alternate Phone: 800-545-3286 Record last updated on 04/09/2025 [...]
Information and Support
FACES:The National Craniofacial AssociationPO Box 11082, Chattanooga, TN 37401Phone: 423-266-1632 Alternate Phone: 800-332-2373 Record last updated on 06/03/2024 [...]
Information and Support
Rett Syndrome.org4600 Devitt Drive, Cincinnati, OH 45246Phone: 513-874-3020 Record last updated on 12/17/2024 [...]
Information and Support
Joubert Syndrome & Related Disorders Foundation (JSRDF)9 Dorenfeld Court, Petaluma, CA 94952 Record last updated on 12/17/2024 [...]
Information and Support
Learning Disabilities Association of America4156 Library Road, Pittsburgh, PA 15234Phone: 412-341-1515 Record last updated on 05/06/2024 [...]
Information and Support
National Foundation for Ectodermal Dysplasias6 Executive Drive Suite 2, Fairview Heights, IL 62208Phone: 618-566-2020 Record last updated on 02/12/2025 [...]
Information and Support
National Military Family Association3601 Eisenhower Avenue Suite 425, Alexandria, VA 22304Phone: 703-931-6632 Record last updated on 08/02/2024 [...]
