Rett Syndrome.org4600 Devitt Drive, Cincinnati, OH 45246Phone: 513-874-3020 Record last updated on 09/12/2022 [...]
Ages Served: Birth to 3
Birth to Three
Information and Support
Joubert Syndrome & Related Disorders Foundation (JSRDF)9 Dorenfeld Court, Petaluma, CA 94952 Record last updated on 09/12/2022 [...]
Information and Support
National Military Family Association3601 Eisenhower Avenue Suite 425, Alexandria, VA 22304Phone: 703-931-6632 Record last updated on 08/02/2024 [...]
Information and Support
National Urea Cycle Disorders Foundation75 South Grand Avenue, Pasadena, CA 91105Phone: 626-578-0833 Alternate Phone: 800-386-8233 Record last updated on 10/17/2024 [...]
Information and Support
Osteogenesis Imperfecta Foundation804 W Diamond Avenue Suite 210, Gaithersburg, MD 20878Phone: 301-947-0083 Alternate Phone: 800-981-2663 Record last updated on 07/29/2024 [...]
Information and Support
Parents of Kids with Infectious DiseasesPO Box 5666, Vancouver, WA 98668Phone: 360-695-0293 Alternate Phone: 877-557-5437 Record last updated on 08/22/2024 [...]
Information and Support
Pull-thru Network, Inc1705 Wintergreen Parkway, Normal, IL 61761Phone: 309-262-0786 Record last updated on 05/03/2024 [...]
Information and Support
Tarlov Cyst Disease Foundation326 Norton Road, Knoxville, TN 37920Phone: 865-577-4945 Record last updated on 07/30/2024 [...]
Information and Support
Tuberous Sclerosis Alliance801 Roeder Road Suite 750, Silver Spring, MD 20910Phone: 301-562-9890 Alternate Phone: 800-225-6872 Record last updated on 08/22/2024 [...]
Information and Support
Facioscapulohumeral Muscular Dystrophy Society (FSH)450 Bedford Street, Lexington, MA 02420 Phone: 781-301-6060 Record last updated on 12/06/2022 [...]