Support and Resources

Myotonic Dystrophy Foundation1004A O'Reilly Avenue, San Francisco, CA 94129Phone: 415-800-7777 Alternate Phone: 866-968-6642 Record last updated on 08/06/2024 [...]

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Support Groups

National Organization for Albinism and Hypopigmentation (NOAH)East Hampstead, NH 03826Phone: 603-887-2310 Alternate Phone: 800-473-2310 Record last updated on 12/27/2024 [...]

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Support Groups

Cornelia de Lange Syndrome Foundation302 West Main Street Suite 100, Avon, CT 06001Phone: 800-223-8355 Alternate Phone: 860-676-8166 Record last updated on 12/20/2024 [...]

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