Dedicated to the identification, treatment, and cure of urea cycle disorders, providing information and education for families and healthcare professionals. National Urea Cycle Disorders Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Pasadena info@nucdf.org 626-578-0823 626-578-0833 800-386-8233 18962… Continue Reading Information and Support [...]
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Information and Support
Supports research, education, awareness, and mutual support through local network groups, chatrooms, e-newsletter, and comprehensive Information Center on website. Osteogenesis Imperfecta Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Gaithersburg Michael Stewart mstewart@oif.org 301-947-0456 301-947-0083 800-981-2663 18981 Information… Continue Reading Information and Support [...]
Information and Support
Archived 8/22/24 BAS. Organization closed as of 1/24. Assists the families of children living with hepatitis, HIV/AIDS, or other chronic viral diseases by offering emotional, financial, and informational support. PKIDS also provides a moderated kids and teen listserve. Parents of Kids with Infectious Diseases Birth to 3, 3 – 4, 5 – 8, 9… Continue Reading Information and Support [...]
Information and Support
WHAT WE DO: Raising awareness and providing support. Encouraging and empowering those impacted by Anorectal Malformations and Hirschsprung Disease for over 30 years We support families from initial diagnosis of these rare disorders through adulthood. We help families with their medical journey, through ostomy care, incontinence and bowel management issues, school and social issues. Pull-thru… Continue Reading Information and Support [...]
Information and Support
Dedicated to improve the level of understanding, diagnosis and treatment of Tarlov cysts. Resources for patients and families. Tarlov Cyst Disease Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Knoxville Sandy Roof sandyproof@tarlovcystfoundation.org 865-577-4945 19070 Information and Support… Continue Reading Information and Support [...]
Information and Support
Dedicated to finding a cure for Tuberous Sclerosis while improving the lives of those affected; offers information and resources with online support and in-person support groups. Tuberous Sclerosis Alliance Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Silver Spring… Continue Reading Information and Support [...]
Information and Support
Trusted Parents is an all inclusive 501(c)3 non profit organization. We focus on the wellbeing of parents and caregivers of special need children. Our mission is to empower a special community of parents and caregivers with support, services, awareness, and help that will help enhance their lives and the lifestyle of their loved ones… Continue Reading Information and Support [...]
Information and Support
Information and support for patients diagnosed with acoustic neuroma and other benign tumors of the cranial nerves. Acoustic Neuroma Association Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Cumming Melissa Baumbick info@anausa.org 770-205-0239 770-205-8211 877-200-8211 4396 Information and Support… Continue Reading Information and Support [...]
Information and Support
Provides educational and management information about diabetes. We have referrals and information about programs for people with diabetes. American Diabetes Association Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Alexandria askada@diabetes.org 800-342-2383 22463 Information and Support Advocacy, Information/Referral,… Continue Reading Information and Support [...]
Information and Support
Vietnamese American Civic Association, Inc. aims to promote and support family self-sufficiency and well-being, and to facilitate community empowerment amongst the Vietnamese population of Boston and Greater Boston. Elevators, Accessible Parking, Accessible Restrooms Vietnamese American Civic Association 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60… Continue Reading Information and Support [...]
