Dedicated to the identification, treatment, and cure of urea cycle disorders, providing information and education for families and healthcare professionals. National Urea Cycle Disorders Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Pasadena info@nucdf.org 626-578-0823 626-578-0833 800-386-8233 18962… Continue Reading Information and Support [...]
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Information and Support
Supports research, education, awareness, and mutual support through local network groups, chatrooms, e-newsletter, and comprehensive Information Center on website. Osteogenesis Imperfecta Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Gaithersburg Michael Stewart mstewart@oif.org 301-947-0456 301-947-0083 800-981-2663 18981 Information… Continue Reading Information and Support [...]
Information and Support
Archived 8/22/24 BAS. Organization closed as of 1/24. Assists the families of children living with hepatitis, HIV/AIDS, or other chronic viral diseases by offering emotional, financial, and informational support. PKIDS also provides a moderated kids and teen listserve. Parents of Kids with Infectious Diseases Birth to 3, 3 – 4, 5 – 8, 9… Continue Reading Information and Support [...]
Information and Support
WHAT WE DO: Raising awareness and providing support. Encouraging and empowering those impacted by Anorectal Malformations and Hirschsprung Disease for over 30 years We support families from initial diagnosis of these rare disorders through adulthood. We help families with their medical journey, through ostomy care, incontinence and bowel management issues, school and social issues. Pull-thru… Continue Reading Information and Support [...]
Information and Support
Dedicated to improve the level of understanding, diagnosis and treatment of Tarlov cysts. Resources for patients and families. Tarlov Cyst Disease Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Knoxville Sandy Roof sandyproof@tarlovcystfoundation.org 865-577-4945 19070 Information and Support… Continue Reading Information and Support [...]
Information and Support
Dedicated to finding a cure for Tuberous Sclerosis while improving the lives of those affected; offers information and resources with online support and in-person support groups. Tuberous Sclerosis Alliance Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Silver Spring… Continue Reading Information and Support [...]
Information and Support
Local supports and information shared by parents of children with Down Syndrome. Has support group meetings organized at least three times a year. We offer all ages play groups for toddlers and school age children. We also have social activities for teen members. The DSRGWM offers scholarships to its members on a first come/need… Continue Reading Information and Support [...]
Information and Support
Vietnamese American Civic Association, Inc. aims to promote and support family self-sufficiency and well-being, and to facilitate community empowerment amongst the Vietnamese population of Boston and Greater Boston. Elevators, Accessible Parking, Accessible Restrooms Vietnamese American Civic Association 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60… Continue Reading Information and Support [...]
Information and Support
Connects patients, families, friends and caregivers for support, education, advocacy, outreach, and research. We have a variety of resources and programs for gastrointestinal motility disorders. Association of GastroIntestinal Motility Disorders Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Lexington… Continue Reading Information and Support [...]
Information and Support
WonderBaby.org works to help parents of young children with visual impairments as well as children with multiple disabilities. You’ll find a database of articles written by parents who want to share with others what they’ve learned about playing with and teaching a blind child. We have links to meaningful resources and ways to connect with… Continue Reading Information and Support [...]
