Local chapter of national organization that works for people affected by seizures through research, education, advocacy and service. resource materials for consumers, schools, and community. People with seizure disorders may also have other medical conditions. Support groups for adults with epilepsy where they can share common experiences and knowledge about living with epilepsy through… Continue Reading Support & Information Groups [...]
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Support and Education
A support group for people and families of persons with albinism. We offer support and education to all ages regarding albinism. Also known as “NOAH”. Albinism occurs in all racial and ethnic groups throughout the world. National Organization for Albinism and Hypopigmentation (NOAH) Birth to 3, 3 – 4, 5 – 8, 9 –… Continue Reading Support and Education [...]
Support and Information
Coordinates services to families who are affected by SIDS or other causes of infant mortality; 24-hr. counseling, home visits, parent support groups and parent-to-parent contacts. The Massachusetts Center for Unexpected Infant and Child Death Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18 Boston Shari Krauss magriefcenter@bmc.org 617-414-5555… Continue Reading Support and Information [...]
Support and Information for Upper Limb Difference
Support group made up of parents who have children with upper limb differences. They are concerned with the challenges facing the child and the entire family. Helping Hands Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Medfield Patti… Continue Reading Support and Information for Upper Limb Difference [...]
Support and Resources
The CSL Foundation, Inc. reaches out to children and teens in Massachusetts challenged by health and life issues, including those who are: Facing a medical crisis Living with a disability Coping with chronic illness or the need for long-term care Terminally ill The mission of The CSL Foundation, Inc. is to provide support, comfort… Continue Reading Support and Resources [...]
Support and Resources
An online community for parents whose children have both Down Syndrome and Autism Spectrum Disorder (ASD). Our mission is to provide specialized outreach through support, education, and resources to increase awareness of the unique challenges caused by co-occurring Down syndrome and autism. Down Syndrome Autism Connection Birth to 3, 3 – 4, 5 –… Continue Reading Support and Resources [...]
Support and Resources
Brings together individuals with Down syndrome for play dates, family activities, seminars, and informational meetings. 21 FrienDS welcomes all interested in being involved. Although the group mainly meets in the Southeastern MA area, the families involved are from several areas of Massachusetts and Rhode Island. Families may choose to just utilize the website, while… Continue Reading Support and Resources [...]
Support and Resources
A MDF toolkit, support groups, family connections, webinars, and conferences to educate affected individuals, the medical community, and community at large. Myotonic Dystrophy Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + San Francisco info@myotonic.org 415-800-7777 866-968-6642 18898 Support… Continue Reading Support and Resources [...]
Support and Resources
Provides patients and family with information about diseases and identifying resources at the same time. We promote education and research about Leukodystrophy. United Leukodystrophy Foundation, Inc. Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59 DeKalb Chris Rice office@ulf.org 815-748-0844 815-748-3211 800-728-5483… Continue Reading Support and Resources [...]
Support for Families with Multiple Birth Children
The Multiples of America aka NOMOTC is a 501(c)(3) non-profit organization dedicated to supporting families of multiple birth children. We offer education, research, and networking. In partnering with local support groups, health care providers, researchers, and educators, we have the highest standards of integrity, respect and professionalism. We work to aid parents of multiples… Continue Reading Support for Families with Multiple Birth Children [...]
