Provides information, financial support, and connections for families of children who have Aicardi Syndrome. Aicardi Syndrome Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18 St. Charles research@aicardisyndromefoundation.org 800-374-8518 630-377-0252 18524 Advocacy and Awareness Information/Referral, Support Groups 7) Out of State Family Support PO Box 3202 Information… Continue Reading Advocacy and Awareness [...]
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Advocacy and Case Management Services
Private advocacy. coaching and case management for adults. Customized services to help people (primarily ages 18 to 60) with disabilities, illnesses or injuries and their families manage systems, issues and obstacles. Focus on problem solving, planning, developing strategies and accessing services. Support around transitions, assistance with public and private benefits and insurance. Consultations and ongoing… Continue Reading Advocacy and Case Management Services [...]
Advocacy and Education
SPaN’s membership is open to anyone interested in the field of Special Education Advocacy including parents, guardians, students, professionals, and others. The purpose of SPaN is to: train and support child advocates in providing care for youth with special needs, assist child advocates for children with disabilities to gain information about and access to… Continue Reading Advocacy and Education [...]
Advocacy and Family Support
The National Federation of Families, a national family-run organization, serves as the national voice for families whose children – of any age – experience mental health and/or substance use challenges during their lifetime. National Federation of Families for Children’s Mental Health 3 – 4, 5 – 8, 9 – 13, 14 – 18 Rockville… Continue Reading Advocacy and Family Support [...]
Advocacy and Family Support Center
Berkshire County Arc’s Advocacy and Family Support services are designed to support children and adults with disabilities living in the community with their families. BCArc’s Family Support Center offers a menu of services throughout central and southern Berkshire County, including: Information and referrals to a broad range of resources and service providers in Berkshire… Continue Reading Advocacy and Family Support Center [...]
Advocacy and Legal Services
Massachusetts legal aid programs put together this website to help you find practical information about your legal rights in Massachusetts. Basic information for children and families, consumers, criminal offender records, disability, employment and unemployment, housing and homelessness, income and benefits, and school. MassLegalHelp can help you find legal aid in your area. We just… Continue Reading Advocacy and Legal Services [...]
Advocacy and Resources
Patient education and advocacy for people with asthma and allergies. Monthly newsletter, books, pamphlets, and videos. Allergy and Asthma Network Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Vienna Lauren Dunlap, PACS info@allergyasthmanetwork.org 703-288-5271 800-878-4403 18530 Advocacy and Resources… Continue Reading Advocacy and Resources [...]
Advocacy and Resources
A nonprofit, volunteer-based family association. National network of families focusing on issues of deaf-blindness. National Family Association for Deaf-Blind Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Sands Point nfadbinfo@gmail.com 516-883-9060 800-255-0411 18927 Advocacy and Resources Advocacy, Information/Referral 7)… Continue Reading Advocacy and Resources [...]
Advocacy and Support
The Cornelia de Lange Syndrome (CdLS) Foundation is a national nonprofit organization that has served people with CdLS and their families since 1981. The Foundation’s mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope. The Foundation shares a number of publications with families and professionals caring for people with CdLS.… Continue Reading Advocacy and Support [...]
Advocacy and Support
National advocacy organization dedicated to raising awareness of the need to screen, identify, and develop medical treatments to enhance the lives of those affected by rare diseases. Hosts a number of programs and initiatives to enhance education for professionals and the public. We have outlets for personal artistic expression and connections. Every Life Foundation… Continue Reading Advocacy and Support [...]
