Support and Education

National Organization for Albinism and Hypopigmentation (NOAH)PO Box 959, East Hampstead, NH 03826-0959 Phone: 800-473-2310 Alternate Phone: 603-887-2310 Record last updated on 12/23/2024 [...]

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Support and Information

The Massachusetts Center for Unexpected Infant and Child Death72 East Concord Street Vose 4, Boston, MA 02118Phone: 617-414-7437 Alternate Phone: 800-641-7437 Record last updated on 07/29/2024 [...]

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Support and Resources

Myotonic Dystrophy Foundation1004A O'Reilly Avenue, San Francisco, CA 94129Phone: 415-800-7777 Alternate Phone: 866-968-6642 Record last updated on 08/06/2024 [...]

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Support and Resources

United Leukodystrophy Foundation, Inc.224 North Second Street Suite 2, DeKalb, IL 60115Phone: 815-748-3211 Alternate Phone: 800-728-5483 Record last updated on 08/22/2024 [...]

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