Support and Resources

Myotonic Dystrophy Foundation1004A O'Reilly Avenue, San Francisco, CA 94129Phone: 415-800-7777 Alternate Phone: 866-968-6642 Record last updated on 08/06/2024 [...]

Read More...

Support and Resources

United Leukodystrophy Foundation, Inc.224 North Second Street Suite 2, DeKalb, IL 60115Phone: 815-748-3211 Alternate Phone: 800-728-5483 Record last updated on 08/22/2024 [...]

Read More...

Support Groups

Epilepsy Foundation of New England540 Gallivan Boulevard 2nd Floor, Dorchester, MA 02124-5401Phone: 617-506-6041 xx102Alternate Phone: 888-576-9996 xx102 Record last updated on 02/25/2025 [...]

Read More...

Support Groups

National Organization for Albinism and Hypopigmentation (NOAH)East Hampstead, NH 03826Phone: 603-887-2310 Alternate Phone: 800-473-2310 Record last updated on 12/27/2024 [...]

Read More...