Cyclic Vomiting Syndrome Association (CVSA)P.O. Box 270341, Milwaukee, WI 53227Phone: 414-342-7880 Record last updated on 08/05/2025 [...]
Ages Served: Birth to 3
Birth to Three
Information and Resources
National Center on Deaf-Blindness 141 Middle Neck Road, Sands Point, NY 11050Phone: 541-800-0412 Record last updated on 02/28/2025 [...]
Information and Resources
Global Genes28 Argonaut Suite 150, Aliso Viego, CA 92656Phone: 949-248-7273 Record last updated on 10/07/2024 [...]
Information and Resources
Joshua Frase Foundationc/o Alison Rockett Frase PO Box 2041, Ponte Verde Beach, FL 32004Phone: 904-607-1358 Record last updated on 08/12/2024 [...]
Information and Support
Batten Disease Support and Research Association1175 Dublin Road, Columbus, OH 43215Phone: 800-448-4570 Record last updated on 07/23/2024 [...]
Information and Support
Caregivers Action Network1150 Connecticut Avenue NW Suite 501, Washington, DC 20036Phone: 202-454-3970 Record last updated on 12/04/2025 [...]
Information and Support
Children's Craniofacial Association13140 Coit Road Suite 517, Dallas, TX 75240Phone: 214-570-9099 Alternate Phone: 800-535-3643 Record last updated on 12/04/2025 [...]
Information and Support
Chromosome 22 Central7108 Partinwood Drive, Fuquay-Varina, NC 27526Phone: 919-818-1346 Record last updated on 03/24/2025 [...]
Information and Support
Chromosome 9p Minus NetworkPO BOX 15484, Baton Rouge, LA 12486 Record last updated on 08/15/2025 [...]
Information and Support
Dandy-Walker Alliance10325 Kensington Parkway Suite 384, Kensington, MD 20895Phone: 877-326-3992 Record last updated on 12/18/2024 [...]
