Chromosome 9p Minus Network

Record last updated 2020/10/05 Comment on this info .Update this info

Contact Information

Chromosome 9p Minus Network
Chromosome 9p Minus Network
Email Address: Membership-Services@9pminus.org

PO BOX 15484 Baton Rouge, LA 12486
Area Served: Out of State

Map Location Chromosome 9p Minus Network

Narrative

This nonprofit organization links families to resources and hosts an annual event for Monosomy 9P, otherwise known as Alfi's Syndrome or 9P-, a rare chromosome anomaly.

Chromosome 9p Minus Network Birth to 3, 3 - 4, 5 - 8, 9 - 13, 14 - 18, 19 – 22, 23 – 59, 60 + Baton Rouge Membership-Services@9pminus.org 18661 Chromosome 9p Minus Network Advocacy, Information/Referral, Support Groups 7) Out of State Family Support PO BOX 15484 Services Coordinator http://www.9pminus.org 12486 Free Service Chromosome Disorders, Rare disorders/low incidence Local Area Services Coordinator NATIONAL

Service Types

  • Family Support

Program Type

  • Advocacy
  • Support Groups

Populations Served

  • Chromosome Disorders

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Additional Information

  • Fees: Free Service