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Populations Served: Rare disorders/low incidence

Advocacy and Awareness

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Aicardi Syndrome FoundationPO Box 3202, St. Charles, IL 60174Phone: 800-374-8518 Alternate Phone: 630-377-0252 Record last updated on 10/11/2024 [...]

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Neurodegeneration with Brain Iron Accumulation Information and Support

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NBIA Disorders Association2082 Monaco Court, El Cajon, CA 92019Phone: 619-588-2315 Record last updated on 10/11/2024 [...]

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