Brain Injury

Disability/Illness Description:

There are two basic types of brain injury, closed head injury (CHI) and open head injury (OHI). CHI is usually caused by rapid acceleration and deceleration of the head, during which the brain in whipped back and forth, thus bouncing off the inside of the skull. The stress of this rapid movement pulls apart nerve fibers, and causes damage to the activated system of neuro-fibers which send out messages to all parts of the body. This type of injury often occurs as a result of motor vehicle crashes.
OHI is a visible injury which may be the result of an accident, a gunshot wound, or a variety of other outside factors. OHI differs from CHI in that the injury is usually located at a focal point in the brain; thus very specific problems will result. For example, the individual may have difficulties with forming speech, but show no problem with writing the same words on paper.
Finally, cardiac arrest, stroke, accidents such as drowning, etc. all cause anoxia (loss of oxygen to the brain), and thus may result in brain injury. In these cases, all of the brain cells may be affected. Thus there may be a change in the individual’s behavior and personality.

Associations/Groups:

Advocates’ Brain Injury Program – Offers range of residential services for adults with traumatic and acquired brain injuries. Includes a continuum of residential services, vocational services and evidence-based rehabilitation. Email program for more information.
Offer active treatment to adults who have Traumatic or Acquired Brain Injury who are living in the community.
One Clarks Hill, Suite 305
Framingham, MA 01702
Phone: 508-628-6300
Email:  BrainInjuryinformation@advocates.org

Brain Injury Association, Inc. (BIA) – Mission is to advance brain injury prevention, research, treatment, and education and to improve the quality of life for all people affected by brain injury.
1608 Spring Hill Road, Suite 110
Vienna, VA 22182
Phone: 703-761-0750
Helpline: 800-444-6443
Fax: 703-761-0755
Email: info@biausa.org

Brain Injury Association of Massachusetts (MBIA) – Provides support and resources to brain injury survivors and families through education and training, advocacy and prevention programs
30 Lyman St, Suite 10
Westboro, MA 01581
Phone: 508-475-0032
Toll Free: 800-242-0030
Fax: 508-475-0040
Email: biama@biama.org

  • BIA – MA SouthEast
    Office provides information resources, support goups, and informal counseling to individuals with brain injuries, families and professionals in the south coast, Cape Cod & the Islands.
    3119 Cranberry Highway, Suite 5F
    E. Wareham, MA 02538
    Toll-Free: 888-607-7678
    Phone: 508-743-0333
    Fax: 508-743-0335
    Email: biamase@biama.org
  • BIA – MA West
    provides information resources, support groups, and informal counseling to individuals with brain injuries, families and professionals in the Berkshires, Pioneer Valley and Amherst / Northampton areas.
    180-C Elm Street
    Pittsfield, MA 01201
    Phone: 413-443-0200
    Toll Free: 888-554-5553
    Fax: 413-443-0211
    Email: biamawest@biama.org

Brain Injury Recovery Network – Provides practical, actionable advice for brain injury survivors and families.
840 Central Avenue
Carlisle, OH 45005
Phone/Fax: 877-810-2100
Email: help@tbirecovery.org

Brain Trauma Foundation (BTF) – Mission to improving TBI patient outcomes worldwide by developing best practice guidelines, conducting clinical research, and educating medical professionals and consumers.
1999 S. Bascom Ave.
Suite 1040
Campbell, CA 95008
Phone: 408-369-9735

Head Injury Community Services (HICS) – HICS is funded by the Brain Injury and Statewide Specialized Community Services Department (BISSCS) of the Massachusetts Rehabilitation Commission.  HICS staff provides opportunities for consumers to develop and build on a variety of life skills; important to each individual’s needs as indicated in the Individualized Service Plan (ISP). Consumers have the opportunity to develop these skills in their home, community, group setting and on a one-to-one basis whenever possible. These skills include: independent living skills, community living skills, social skills, recreation and leisure, prevocational skills, health and wellness, and case management services. To be eligible for this program an individual must be at least 22 years of age, medically stable, continent of bowel and bladder or have a personal care attendant available to meet these needs, and to be able to functionally benefit from the services provided. Referrals to this program are made by The Brain Injury and Specialized Community Services Program of the Massachusetts Rehabilitation Commission. This agency also determines eligibility.
1357 Hancock Street
Quincy, MA 02169
Phone: 617-847-4987
Contact  HICS 617-847-4987 for an application.

Neuro-Rehab Management – An independent case management company specializing in providing services to individuals with neurological impairments. We work with individuals who have sustained a brain injury due to an accident, illness, or other neuromuscular disability, such as spinal cord injury and multiple sclerosis. We also work with individuals with multiple disabilities.
800 West Cummings Park, Suite 4950
Woburn, MA 01801
Phone: 781-979-0018
Fax: 781-979-0913
Email: info@neurorehabmgt.com

Head Injury Hotline – Information line for people with head injuries and their families
Brain Injury Resource Center
P.O.BOX 84151
Seattle, WA 98124-5451
Phone: 206-621-8558
Email: brain@headinjury.com

Head Injury and Statewide Specialized Community Based Services (BISSCS) – Provides community support and services for individuals with brain injuries (BI) and a variety of disabilities in order for them to live as independent as possible.
600 Washington Street
Boston, MA 02111
Phone: 1-800-223-2559
Email: SHIPU@MRC.state.ma.us

Acquired Brain Injury (ABI) Waivers -Two home and community-based services waivers will help Medicaid-eligible persons with ABI move to the community. If you live in a nursing home or chronic or rehabilitation hospital and have an ABI, you may want to apply for one of the waivers. Applications for the ABI Waiver may be submitted at any time.

Brain Injury Rehabilitation Program – Spaulding Rehabilitation Hospital – Provides state-of-the-art rehabilitative care for adults and children who are recovering from an acquired brain injury as a result of traumatic causes (such as an accident) or non-traumatic causes
300 First Avenue
Boston, MA, 02129
Phone: 617-952-5350

Supportive Living Inc. – Creates long-term housing options for people who have sustained a brain injury.
400 West Cummings Park, Suite 6100
Woburn, MA 01801
Phone: 781-937-3199
Fax: 781-937-5503
Email: info@supportivelivinginc.org

Other Information:

Informational Websites:

Dealing with Anger after a Traumatic Brain Injury – Support for TBI survivors and family members.

TBI Home – Peer support website for people living with brain injury.

Brain Injury Network – Advocacy by and for People with ABI (Acquired Brain Injury)

Brain Injury Resource Center – Brain injury facts, frequently asked questions and toolkit.

Traumatic Brain Injury Survival Guide – Online book for  TBI survivors.

National Brain Injury Resources – Offers resource directory, brain injury topics, personal stories and TBI basics.

 

Fact Sheet last updated on: 9/26/2017