DeafBlind

Disability/Illness Description:

Deafblind is a combined loss of hearing and vision, whether from birth (congenital) or from an onset later in life (adventitious). Illness, trauma and/or age are the leading causes of deaf-blindness. Many people who are born deaf-blind may have additional disabilities such as developmental delays or intellectual disability. However, deaf-blindness does not necessarily entail total hearing and vision loss or developmental delays.

Associations/Groups:

American Association of Deaf-blind (AADB)
national consumer organization of, by, and for deaf-blind Americans and their supporters. “Deaf-blind” includes all types and degrees of dual vision and hearing loss.
PO Box 24493
Federal Way, WA 98093
Email: aadb-info@aadb.org

Center for Parent Information and Resources
fact sheet and information for parents
Center for Parent Information and Resources
c/o Statewide Parent Advocacy Network
35 Halsey St., Fourth Floor
Newark, NJ 07102
Email: malizo@spannj.org

Deafblind Contact Center (DBCC)
We provide Deaf and Hard of Hearing Independent Living, health literacy and support, community access for DeafBlind adults, and related services.
C/O D.E.A.F., Inc.
Contact Form

  • Boston Office
    215 Brighton Ave
    Allston, MA 02134
    Phone: 617-505-4823 VP/V
    Phone: 617-254-4041 TTY/V
    Fax: 617-254-7091
  • New Bedford Office 105 William Street
    Room 25 (2nd Floor)
    New Bedford, MA 02740
    (508) 858-5178 VP/V
    (508) 990-1382 TTY/V
    (508) 996-2170 Fax
  • Salem Office 35 Congress Street
    Suite 204 (2nd Floor)
    Salem, MA 01970
    (978) 910-0165 VP/V
    (978) 740-0394 TTY
    (978) 740-0329 V
    (978) 740-0389 Fax
  • Taunton Office 71 Main Street
    Suite 1300B (Lower Level)
    Taunton, MA 02780
    (508) 692-9390 VP/V
    (508) 802-5833 TTY/V
    (508) 802-5835 Fax

Deafblind Community Access Network (DBCAN)
matches individuals with trained providers to help deafblind people keep their independence.

National Family Association for Deaf-blind (NFADB)
provides online training and resources, advocacy, information on support services and information on interpreters.
c/o Helen Keller National Center
141 Middle Neck Road
Sands Point, NY 11050
Phone: 800-255-0411
Fax: 516-883-9060
Email: nfadbinfo@gmail.com

National Center on Deaf-Blindness (NCDB)
provides information on intrvener services, online library, forums and training
345 North Monmouth Ave
Monmouth, OR 97361
Phone: 503-838-8754
Email: info@nationaldb.org

New England Consortium of Deafblind Projects
provides technical assistance to children who are deafblind in Connecticut, Maine, Massachusetts and New Hampshire, as well as to their families and educational programs.
175 North Beacon Street
Watertown, MA 02472
Phone: 617-972-7515
Deafblind@Perkins.org

Perkins School for the Blind – Deaf/Blind Program
offers comprehensive educational services to students age 3 to 22 who are deafblind or deaf with additional disabilities, taking a developmental approach to language, communication and curriculum.
175 North Beacon Street
Watertown, MA 02472
Phone: 617-924-3434
Fax: 617-972-7315
Email: Info@Perkins.org

Fact Sheet last updated on: 1/19/2017