Fragile X Syndrome
Fragile X syndrome is a genetic disorder that causes developmental disabilities. These can include learning disabilities; behavioral disabilities; mild to severe intellectual disabilities; attention deficit hyperactivity disorder; sensory and perceptual differences; speech and language disabilities; certain physical characteristics; and/or autism or autistic behaviors. Effects vary among individuals; not everyone with Fragile X has all of these characteristics.
National Fragile X Foundation
Promotes education and research about Fragile X; disseminates information and new findings; provides names of parent contacts, regional resource centers and professionals with expertise in Fragile X.
1861 International Drive, Suite 200
Mclean, VA 22101
FRAXA Research Foundation
National parent organization with the goal of promoting research aimed at treatment. Funds a gene therapy study and a study on what the gene responsible for Fragile X does; publishes a quarterly newsletter for parents, physicians, and educators; and publishes a medication guide and general informational brochures.
10 Prince Place, Suite 203
Newburyport, MA 01950
Fact Sheet last updated on: 9/15/2021
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