Fragile X syndrome is a genetic disorder that causes developmental disabilities. These can include learning disabilities; behavioral disabilities; mild to severe intellectual disabilities; attention deficit hyperactivity disorder; sensory and perceptual differences; speech and language disabilities; certain physical characteristics; and/or autism or autistic behaviors. Effects vary among individuals; not everyone with Fragile X has all of these characteristics.
National Fragile X Foundation
Promotes education and research about Fragile X; disseminates information and new findings; provides names of parent contacts, regional resource centers and professionals with expertise in Fragile X.
2100 M St., NW
Ste.170 Box 302
Washington, DC 20037-1233
Southern Mass & Rhode Island
FRAXA Research Foundation
National parent organization with the goal of promoting research aimed at treatment. Funds a gene therapy study and a study on what the gene responsible for Fragile X does; publishes a quarterly newsletter for parents, physicians, and educators; and publishes a medication guide and general informational brochures.
10 Prince Place, Suite 203
Newburyport, MA 01950
Fact Sheet last updated on: 5/2/2019