Post Polio Syndrome

Disability/Illness Description:

Post Polio Syndrome is a late effect of polio. Post-polio syndrome is characterized by the following symptoms:

  • unaccustomed fatigue
  • muscle weakness
  • respiratory difficulties
  • muscle and joint pain
  • intolerance to cold
  • functional loss

Lifestyle changes, pacing and the use of adaptive equipment are the most effective ways to minimize the effects of Post Polio Syndrome.

Associations/Groups:

Associations/Groups:

Post Polio Health International
Mission is to enhance the lives and independence of polio survivors and home ventilator users through education, advocacy, research and networking.
4207 Lindell Blvd, #110
Saint Louis, MO 63108-2930
Phone: 314-534-0475
Fax: 314-534-5070
Email: info@post-polio.org

Greater Boston Post-Polio Association (GBPPA)
The Greater Boston Post Polio Association is disbanding after 30 years of providing education, sharing resources and offering support to the post polio community and their families. The Association no longer has the volunteers nor the energy to continue as a viable group. After much thoughtful deliberation, the board of directors voted to officially end all operations of the Association as of October, 2016. Thank you to the many members and volunteers who supported the Association with their time and financially for 30 years. If you are looking for Post Polio resources please contact:
Post-Polio Health International (PHI)
4207 Lindell Blvd., #110, Saint Louis, MO 63108-2930 USA
(314)534-0475
email: info@post-polio.org

The National Center on Physical Activity and Disability (NCPAD)
Provides information and resources for all types of physical activity, latest research , directories of health and leisure organizations, accessible recreation facilities and equipment vendors.
4000 Ridgeway Drive
Birmingham, AL 35209
Toll Free: 800-900-8086
Fax: 205-313-7475
Email: email@nchpad.org

International Rehabilitation Center for Polio at Spaulding (IRCP)
Spaulding Rehabilitation Hospital
300 First Avenue
Boston, MA 02129
Phone: 617-952-5000
Contact Form

Other Information:

Post-Polio Syndrome Fact SheetNational Institute of Neurological Disorders and Stroke

Understanding Post-Polio Syndrome – Easter Seals

Fact Sheet last updated on: 12/14/2016