Spina Bifida

Disability/Illness Description:

Spina Bifida is one type of neural tube birth defect which involves incomplete development of the brain, spinal cord and/or protective coverings for these organs. Spina Bifida is the most common neural tube defect and affects the spinal cord. Because of today’s sophisticated medical techniques, most children born with Spina Bifida live well into adulthood. However, the challenges brought on by this condition are likely to continue throughout the child’s life. Medical, psychological and educational therapy and services are recommended as needed to ensure that the child leads an independent and fulfilling life.

Associations/Groups:

Spina Bifida Association of America (SBAA) – Serves adults and children who live with the challenges of Spina Bifida.
1600 Wilson Blvd, Suite 800
Arlington, VA 22209
Phone: 202 944-3285 or 800 621-3141
Fax: 202 944-3295
Email: sbaa@sbaa.org

Spina Bifida Association of Greater New England (SBAGNE) – Group of parents, adults with Spina Bifida, and dedicated professionals working together to support and encourage families and individuals throughout the Greater New England area. It is our goal to enrich the lives of those affected by Spina Bifida through education, parental support, social networking, advocacy and public awareness.
219 East Main Street
Suite 100 B
Milford, MA 01757
Toll Free: 888-479-1900
Fax: 508-482-5301
Ellen Heffernan-Dugan, Executive Director
E-mail: edugan@SBAGreaterNE.org

Spina Bifida Clinics in Massachusetts

Other Information:

Spina Bifida – Centers for Disease Control and Prevention

Spina Bifida – National Institute of Neurological Disorders and Stroke

Fact Sheet last updated on: 10/2/2017