Sudden Infant Death Syndrome

Disability/Illness Description:

Sudden Infant Death Syndrome (SIDS) is the quick and sudden death of an infant. SIDS usually occurs when an infant is asleep, showing no signs of suffering. SIDS cases are given a “diagnosis of exclusion”. This means that after an autopsy has been performed, the death scene has been examined, and a review of the child’s history completed, medical professionals then rule out all other possible causes of death, and label the cause as SIDS.

SIDS causes are a mystery, it is a recognized medical disorder. It is listed in the International Classification of Diseases, 10th revision.

Associations/Groups:

American SIDS Institute – National nonprofit health care organization offers information, education and family support.
528 Raven Way
Naples, FL 34110
Phone: 239 431-5425
Fax: 239 431-5536

Massachusetts Center for SIDS Provides counseling , support groups, information & referral
Boston Medical Center Dept of Pediatrics
Dowling Building
771 Albany St
4th Floor, Room 4204
Boston, MA 02118
Phone: 617 414-7437 or 800 641-7437 (MA & RI 24-hour on-call service)
Fax: 617 414-5555
Email: shari.king@bmc.org (Program Director Shari King)

The National Center for Education in Maternal and Child Health – Use this SUID/SIDS Gateway to find resources for states, communities, professionals, and families to reduce sudden unexpected infant death (SUID) and Sudden Infant Death Syndrome (SIDS), promote healthy outcomes, and cope with grief when losses occur.
Georgetown University
Box 571272
Washington, DC 20057-1272

First Candle – Offers education, support and  information for parents.
9 Newport Drive, Suite 200,
Forest Hill, MD 21050
Phone: 443 640-1049
24/7 Hotline: 800 221-7437
E-mail: info@firstcandle.org

Other Information:

SIDS Network, Inc.

SIDS.ORG

SIDS and Kids

Bereaved Parent Support Groups Listings

SIDS Information – Newton Wellesley Hospital

Grief, Loss & Traumatic Birth Support Links and Information – Massachusetts Birth Connections

CDC – About SUID and SIDS

Fact Sheet last updated on: 9/27/2017