Support for Siblings of People with Disabilities

Sibling Resources

Massachusetts Sibling Support Networkcomprised of adult siblings, parents of young siblings, sibling service providers, and mental health professionals.  The goals of MSSN are threefold: to educate the community about issues faced by siblings of people with disabilities; to create welcoming communities for siblings of all ages within Massachusetts; and to improve the range and availability of services for siblings across the lifespan. Those interested in sibling issues are welcome to join MSSN. The MSSN has a resource page online that lists sibling support groups across the state.
Email: info@masiblingsupport.org
Phone: 617 807-0558

Sibling Support ProjectNational effort dedicated to the lifelong concerns of brothers and sisters of people who have special health and developmental needs by increasing the availability of peer support and education programs. This is accomplished by training local service providers on how to create community-based peer support programs for young siblings; hosting workshops, listservs, and websites for young and adult siblings; and increasing parents’ and providers’ awareness of siblings’ unique, lifelong, and ever-changing concerns through workshops, websites, and written materials.

SibShops Offers recreational support groups called SibShops for  children and adolescents.
Find a local sibshop

SibNet  – For adult siblings of people who have disabilities. SibNet is a “closed” group. Only adult siblings of people with special needs may be members.

Sibling Stories BlogSiblings share their stories and experiences.

Supporting Siblings of Children with Mental Health Needs (PDF)
This informational parental guide was written by Emily Rubin, and published by the Massachusetts Developmental Disabilities Network.
For additional information contact Emily Rubin, Director of Sibling Support, Eunice Kennedy Shriver Center.
Phone: 774-455-6537
Email: emily.Rubin@umassmed.edu

Local Chapters of The Arc – Local chapters of The Arc offer programming for siblings across the lifespan.  Contact your local chapter to find out if they offer sibling support groups.

To locate  your local Arc

Sibling Leadership NetworkSLN provides policy recommendations, tools, information and support to help siblings advocate alongside their brothers and sisters with disabilities.

RECOMMENDED READING

Siblings: Brothers and Sisters of Children with Special Needs by Kate Strohm

Siblings Without Rivalry by Adele Faber and Elaine Mazlish

Sibshops: Workshops for Siblings of Children with Special Needs by Don Meyer, M.Ed,
& Patricia Vadasy, PhD.

Thicker than Water: Essays by Adult Siblings of People with Disabilities by Don Meyer (Editor)

Turbo Max: A Story for Siblings of Bipolar Children by Tracy Anglada

Views From Our Shoes: Growing up with a Brother or Sister with Special Needs by Don Meyer (Editor)

What About Me? Growing Up with a Developmentally Disabled Sibling by Bryna Siegel and Stuart Silverstein

For additional books about sibs and families, visit the Sibling Support Project Store

 

Fact Sheet last updated on: 2/15/2017