Dedicated to improve the level of understanding, diagnosis and treatment of Tarlov cysts. Resources for patients and families. Tarlov Cyst Disease Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Knoxville Sandy Roof sandyproof@tarlovcystfoundation.org 865-577-4945 19070 Information and Support… Continue Reading Information and Support [...]
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Information and Support
Dedicated to finding a cure for Tuberous Sclerosis while improving the lives of those affected; offers information and resources with online support and in-person support groups. Tuberous Sclerosis Alliance Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Silver Spring… Continue Reading Information and Support [...]
Information and Support
Trusted Parents is an all inclusive 501(c)3 non profit organization. We focus on the wellbeing of parents and caregivers of special need children. Our mission is to empower a special community of parents and caregivers with support, services, awareness, and help that will help enhance their lives and the lifestyle of their loved ones… Continue Reading Information and Support [...]
Information and Support
The most important step in managing your congenital heart disease (CHD) is to know the name of your defect, know what it means, and be able to find the recommended doctors and care options. The Adult Congenital Heart Association’s Clinic Directory Health information, Heart to Heart Peer Support Program Research can help. Adult Congenital… Continue Reading Information and Support [...]
Information and Support
Offers an info guide, publications and videos on topics related to allergies and asthma. Has a quarterly newsletter. Also has a doctor referral line. Has National Allergy Bureau for accurate pollen count and mold levels. Has a Find an Allergist tool and a pollen count tool. American Academy of Allergy, Asthma & Immunology Birth… Continue Reading Information and Support [...]
Information and Support
The American Autism Association provides families impacted by autism with informational resources, educational workshops, and therapeutic recreational programs. American Autism Association Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + New York info@myautism.org 877-654-4483 18536 Information and Support Advocacy, Information/Referral,… Continue Reading Information and Support [...]
Information and Support
Coordinates meetings, speakers, parent-to-parent visitation, summer camps, transportation, emergency funding, and publications. We are a community of families, survivors, and friends who have been affected by childhood and teen cancer. We offer our community support, information, advocacy. We are their voice. American Childhood Cancer Organization 3 – 4, 5 – 8, 9 – 13,… Continue Reading Information and Support [...]
Information and Support
Promotes education, supports research, advocates on behalf of people with liver disease, family members and caregivers. Contact info@liverfoundation.org for info. American Liver Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + West Orange Warren Hall info@liverfoundation.org 212-483-8179 212-668-1000 800-465-4837… Continue Reading Information and Support [...]
Information and Support
Organization for persons and families with nystagmus; offers peer support and education, guidance, counseling, college scholarships, internships, and annual conference. American Nystagmus Network (ANN) Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Decatur webmaster@nystagmus.org 18552 Information and Support Advocacy,… Continue Reading Information and Support [...]
Information and Support
Works to improve the lives of people with syringomyelia, Chiari malformations, and related disorders. Publishes a newsletter and offers videotapes, a conference, and support groups. American Syringomyelia and Chiari Alliance Project Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 +… Continue Reading Information and Support [...]
