Provides information and support to parents, patients, family members, caregivers, friends and professionals dealing with Krabbe Disease and related leukodystrophies. Hunter’s Hope Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18 Orchard Park Melissa Jablonski info@huntershope.org 716-667-1200 18803 Information and Referral (I&R) and Services Information/Referral, Support Groups… Continue Reading Information and Referral (I&R) and Services [...]
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Information and Referral (I&R) and Services
Aging Services of North Central Massachusetts (formerly known as Montachusett Home Care) provides comprehensive information and quality services so that older people, individuals with disabilities, and their families are empowered to make personalized choices to ensure a life of dignity, safety, and respect. For many people and families, making the phone call to Aging Services of… Continue Reading Information and Referral (I&R) and Services [...]
Information and Referral (I&R) Services
Our Information and Referral specialists are often a consumer’s first point of contact with BCIL, providing information on disability issues and referring consumers to the appropriate people at BCIL, or other agencies, for assistance with the concerns they may have. FIRST TIME VISITORS to our web site should read the Frequently Asked Questions (FAQ) as they may… Continue Reading Information and Referral (I&R) Services [...]
Information and Referral for Camps
Regional information and referral for camps. Call for customized listing of children’s summer camp referrals and for information about a full range of camp choices. The American Camp Association, New England enriches the lives of children and families through quality camp experiences. American Camp Association of New England 5 – 8, 9 – 13,… Continue Reading Information and Referral for Camps [...]
Information and Referral for Lower Cost Care and Meds
NeedyMeds is a national non-profit. We are a comprehensive and reliable source of information on assistance programs available for people having difficulties paying for health care. The website (http://www.needymeds.org) is visited by 10,000-14,000 people each work day. Needymeds information is always free, easy to access, and updated regularly. Unlike similar sites, Needymeds requires no… Continue Reading Information and Referral for Lower Cost Care and Meds [...]
Information and Resources
A rare genetic disease patient advocacy organization centered on increasing rare disease awareness public and doctor education building community supporting research Global Genes Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Aliso Viego Hira Chowdhary 949-248-7273 18764 Information and… Continue Reading Information and Resources [...]
Information and Resources
Dedicated to supporting ongoing medical research for myotubular myopathy and other related congenital myopathies and families lacking the resources for medical equipment. Joshua Frase Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22 Ponte Verde Beach Alison Rockett Frase info@joshuafrase.org 904-273-9818 904-607-1358 18826 Information… Continue Reading Information and Resources [...]
Information and Resources
Dedicated to the support of research for the study of early onset bipolar disorder. Offers information and resources for families. Diagnostic Criteria 1) Episodic and Abrupt Transitions in Mood States 2) Fear of Harm 3) Thermoregulatory Disturbance 4) Aggression 5) Sleep/Wake Disturbances 6) Symptoms Are Not Due to a General Medical Condition 7) A… Continue Reading Information and Resources [...]
Information and Resources
Our mission is to be a peer guided supportive and safe place, for those living with Lyme Disease, and their care partners. We share ways and resources for living well. We are an all volunteer 501(c)(3) organization founded in October of 2013. All of our services are provided free of charge. Our income is… Continue Reading Information and Resources [...]
Information and Resources
TBI is the leading cause of death and disability in children and adults ages 1 to 44. Improves the outcome of patients worldwide by developing best practices, conducting research, and educating medical professionals and consumers. Brain Trauma Foundation (BTF) Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18,… Continue Reading Information and Resources [...]
