Caregiver Resources Ataxia Telangiectasia Children's Project

Record last updated 2023/05/18 Comment on this info .Update this info

Narrative

Ataxia-telangiectasia (A-T) is a genetic disease that causes loss of muscle control and balance, cancer, lung disease and immune system problems in children and young adults, shortening their lives. The nonprofit A-T Children’s Project partners with academic and industry investigators worldwide – organizing and supporting innovative research, conferences, clinical teams, data platforms and biomarkers – to optimize disease management strategies, develop new treatments and find a cure.

Service Types

• Family Support

Program Type

• Advocacy

Populations Served

• Rare disorders/low incidence

Ages Served

• Birth to 3
• 3 - 4
• 5 - 8
• 9 - 13
• 14 - 18
• 19 - 22
• 23 – 59

Additional Information

• Fees: Free Service