Information and Support

Record last updated 2024/04/30 Comment on this info .Update this info

Contact Information

Chromosome 9p Minus Network
Information and Support
Email Address: Membership-Services@9pminus.org

PO BOX 15484 Baton Rouge, LA 12486
Area Served: Out of State

Map Location Information and Support

Narrative

This nonprofit organization links families to resources and hosts an annual event for Monosomy 9P, otherwise known as Alfi's Syndrome or 9P-, a rare chromosome anomaly.

Service Types

  • Family Support

Program Type

  • Advocacy
  • Support Groups

Populations Served

  • Chromosome Disorders
  • Developmental Disability
  • Intellectual Disabilities

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Additional Information

  • Fees: Free Service