Education, Advocacy, Information & Support

Record last updated 2023/11/13 Comment on this info .Update this info

Contact Information

Chromosome Disorder Outreach
Contact: Linda Sorg or Darlene Axelsson , Co-President
Email Address: info@chromodisorder.org
Phone: 561-395-4252 xFamily Helpline

PO Box 724 Boca Raton, FL 33429
Area Served: Out of State

Map Location Education, Advocacy, Information & Support

Narrative

CDO is a nonprofit organization founded in 1992 providing support and information on rare chromosome and gene mutation disorders.  We offer an extensive online library of available up-to-date articles, newsletters, research opportunities, interaction with our medical advisory board, and a closed FaceBook group.  CDO also offers personalized networking programs and information packets specific to each member's diagnosis. 

Service Types

  • Family Support

Program Type

  • Advocacy
  • Support Groups

Populations Served

  • Chromosome Disorders

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Languages Spoken

  • Spanish

Additional Information

  • Fees: Free Service