Advocacy and Support Cornelia de Lange Syndrome Foundation, Inc.

Record last updated 2023/11/17 Comment on this info .Update this info

Narrative

The Cornelia de Lange Syndrome (CdLS) Foundation is a national nonprofit organization that has served individuals with CdLS and their families since 1981. The Foundation’s mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope.

The Foundation distributes a number of publications to families and professionals caring for individuals with CdLS, as well as hosts meetings and conferences where researchers and families can meet to exchange information. The Foundation also acts as a facilitator between families and professionals, utilizing a team of professionals who lend their expertise to those caring for an individual with CdLS.

Service Types

• Family Support

Program Type

• Advocacy
• Counseling
• Support Groups
• Transition

Populations Served

• Cornelia de Lange Syndrome
• Developmental Disability

Ages Served

• Birth to 3
• 3 - 4
• 5 - 8
• 9 - 13
• 14 - 18
• 19 - 22
• 23 – 59
• 60 +

Languages Spoken

• Spanish

Accessibility Features

• Accessible Parking
• Accessible Public Transportation
• Accessible Restrooms
• Elevators
• Latex Free Environment

Additional Information

• Fees: Free Service