Cornelia de Lange Syndrome Foundation Cornelia de Lange Syndrome Foundation, Inc.

Record last updated 2021/12/21 Comment on this info .Update this info

Contact Information

Cornelia de Lange Syndrome Foundation, Inc.
Contact: Deirdre Summa, Family Service Manager
Email Address: info@cdlsusa.org
Phone: 860-676-8166
Alternate Phone: 800-753-2357
Fax: 860-676-8337

30 Tower Lane, Suite 400 Avon, CT 06001
Area Served: Out of State

Map Location Cornelia de Lange Syndrome Foundation

Narrative

The Cornelia de Lange Syndrome (CdLS) Foundation is a national non-profit organization that has served individuals with CdLS and their families since 1981. The Foundation’s mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope.

The Foundation distributes a number of publications to families and professionals caring for individuals with CdLS, as well as hosts meetings and conferences where researchers and families can meet to exchange information. The Foundation also acts as a facilitator between families and professionals, utilizing a team of professionals who lend their expertise to those caring for an individual with CdLS.

Service Types

  • Family Support

Program Type

  • Advocacy
  • Applied Behavior Analysis
  • Communication
  • Community Supports Program
  • Counseling
  • Support Groups
  • Transition

Populations Served

  • Cornelia de Lange Syndrome

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Languages Spoken

  • Spanish

Accessibility Features

  • Accessible Parking
  • Accessible Public Transportation
  • Accessible Restrooms
  • Elevators
  • Latex Free Environment

Additional Information

  • Fees: Free Service