Record last updated 2024/12/19 Comment on this info .Update this info
Contact Information
Cornelia de Lange Syndrome Foundation, Inc.Contact: Whitney Rinaldi, B.S.W., Program Director Family Service
Email Address: outreach@cdlsusa.org
Phone: 860-676-8166
Alternate Phone: 800-753-2357
Fax: 860-676-8337
View Advocacy and Support Website
30 Tower Lane Suite 400 Avon, CT 06001
Area Served: Out of State
Map Location Advocacy and Support
Narrative
The Cornelia de Lange Syndrome (CdLS) Foundation is a national nonprofit organization that has served people with CdLS and their families since 1981. The Foundation’s mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope.
The Foundation shares a number of publications with families and professionals caring for people with CdLS. We host meetings and conferences where researchers and families can meet to exchange information. The Foundation also acts as a facilitator between families and professionals. We have a team of professionals who lend their expertise to those caring for an person with CdLS.
Service Types
- Family Support
Program Type
- Advocacy
- Counseling
- Support Groups
- Transition
Populations Served
- Cornelia de Lange Syndrome
- Developmental Disability
Ages Served
- Birth to 3
- 3 - 4
- 5 - 8
- 9 - 13
- 14 - 18
- 19 - 22
- 23 – 59
- 60 +
Languages Spoken
- Spanish
Accessibility Features
- Accessible Parking
- Accessible Public Transportation
- Accessible Restrooms
- Elevators
- Latex Free Environment
Additional Information
- Fees: Free Service
