Information and Support Dandy-Walker Alliance

Record last updated 2023/11/13 Comment on this info .Update this info

Contact Information

Dandy-Walker Alliance
Contact: Brian Blackwell, Director of Outreach
Email Address:
Phone: 877-326-3992

10325 Kensington Parkway Suite 384 Kensington, MD 20895
Area Served: Out of State

Map Location Information and Support


Offers informational activities and works to increase awareness of the congenital birth defect Dandy-Walker.

One in 10,000 children is born with Dandy-Walker Malformation, a congenital brain malformation involving the cerebellum and the fluid-filled spaces around it. Dandy-Walker is often associated with other conditions such as hydrocephalus, seizures, mobility issues, developmental delays, other central nervous system disorders, and more. 

The Dandy-Walker Alliance is dedicated to serving and supporting everyone affected by Dandy-Walker. 

Service Types

  • Family Support
  • Self-Advocacy

Program Type

  • Support Groups

Populations Served

  • Dandy-Walker Syndrome

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18

Languages Spoken

  • Spanish

Additional Information

  • Fees: Free Service