Record last updated 2023/11/13 Comment on this info .Update this info

Narrative

Offers informational activities and works to increase awareness of the congenital birth defect Dandy-Walker.

One in 10,000 children is born with Dandy-Walker Malformation, a congenital brain malformation involving the cerebellum and the fluid-filled spaces around it. Dandy-Walker is often associated with other conditions such as hydrocephalus, seizures, mobility issues, developmental delays, other central nervous system disorders, and more. 

The Dandy-Walker Alliance is dedicated to serving and supporting everyone affected by Dandy-Walker. 

Service Types

• Family Support
• Self-Advocacy

Program Type

• Support Groups

Populations Served

• Dandy-Walker Syndrome

Ages Served

• Birth to 3
• 3 - 4
• 5 - 8
• 9 - 13
• 14 - 18

Languages Spoken

• Spanish

Additional Information

• Fees: Free Service