Disability Support Living with Marfans

Record last updated 2017/07/06 Comment on this info .Update this info

Contact Information

Living with Marfans
Contact: Jonathan Rodis, National Disability Advocate
Email Address: jrmarfan58@aol.com
Phone: 617-846-4975

46 Pearl Avenue Winthrop, MA 02152
Area Served: Greater Boston

Map Location Disability Support

Narrative

For the past 10 years since becoming disabled from Marfan syndrome and Fibromyalgia, I have been helping people get approved for social security disability.  My focus started with Marfans and has now spread to other connective tissue disorders as well other rare disorders.  I charge no fee for my help/support. I also help provide support to multiple rare disorders in giving advice on starting support groups and contacts for more information on their particular condition.-JR

 Jonathan is the President of the MASSACHUSETTS CHAPTER OF THE MARFAN FOUNDATION

Service Types

  • Disability Awareness
  • Family Support
  • Legal Representation

Program Type

  • Advocacy
  • Information/Referral
  • Support Groups

Populations Served

  • All Disabilities

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Additional Information

  • Fees: Free Service