Marfans Support Living with Marfans

Record last updated 2022/09/30 Comment on this info .Update this info

Narrative

For the past 10 years since becoming disabled from Marfan syndrome and Fibromyalgia, I have been helping people get approved for social security disability.  My focus started with Marfans and has now spread to other connective tissue disorders as well other rare disorders.  I charge no fee for my help/support. I also help provide support to multiple rare disorders in giving advice on starting support groups and contacts for more information on their particular condition.-JR

 Jonathan is the President of the MASSACHUSETTS CHAPTER OF THE MARFAN FOUNDATION

Service Types

• Disability Awareness
• Family Support

Program Type

• Advocacy
• Support Groups

Populations Served

• Ehlers-Danlos Syndrome
• Musculoskeletal
• Physical Disabilities

Ages Served

• Birth to 3
• 3 - 4
• 5 - 8
• 9 - 13
• 14 - 18
• 19 - 22
• 23 – 59
• 60 +

Additional Information

• Fees: Free Service