Disability Support Living with Marfans

Record last updated 2020/04/13 Comment on this info .Update this info

Contact Information

Living with Marfans
Contact: Jonathan Rodis, National Disability Advocate
Email Address: jrmarfan58@aol.com
Phone: 617-846-4975

46 Pearl Avenue Winthrop, MA 02152
Area Served: Greater Boston

Map Location Disability Support

Narrative

For the past 10 years since becoming disabled from Marfan syndrome and Fibromyalgia, I have been helping people get approved for social security disability.  My focus started with Marfans and has now spread to other connective tissue disorders as well other rare disorders.  I charge no fee for my help/support. I also help provide support to multiple rare disorders in giving advice on starting support groups and contacts for more information on their particular condition.-JR

 Jonathan is the President of the MASSACHUSETTS CHAPTER OF THE MARFAN FOUNDATION

Living with Marfans Birth to 3, 3 - 4, 5 - 8, 9 - 13, 14 - 18, 19 – 22, 23 – 59, 60 + Winthrop Jonathan Rodis jrmarfan58@aol.com 617-846-4975 11199 Disability Support Advocacy, Information/Referral, Support Groups 2) Greater Boston 46 Pearl Avenue National Disability Advocate http://www.jrmarfan58.com/ 02152 Free Service Local Area National Disability Advocate NEW ENGLAND

Program Type

  • Advocacy
  • Support Groups

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Additional Information

  • Fees: Free Service