Advocacy and Support Every Life Foundation for Rare Diseases

Advocacy and Support Every Life Foundation for Rare Diseases

Record last updated 2021/11/02 Comment on this info .Update this info

Contact Information

Every Life Foundation for Rare Diseases
Contact: Mary Morlino, Patient Engagement Consultant
Email Address: mmorlino@everylifefoundation.org
Phone: 202-697-7273

1012 14th Street, NW, Suite 500 Washington, DC 20005
Area Served: Out of State

Map Location Advocacy and Support

Narrative

National advocacy organization dedicated to raising awareness of the need to screen, identify, and develop medical treatments and protocols to enhance the lives of those affected by rare diseases. Hosts a number of programs and initiatives to enhance education for professionals and the public, as well as outlets for personal artistic expression and connections.

Service Types

  • Socialization Activities

Program Type

  • Advocacy
  • Support Groups

Populations Served

  • Rare disorders/low incidence

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Additional Information

  • Fees: Free Service