Advocacy and Support Every Life Foundation for Rare Diseases
Record last updated 2024/02/20 Comment on this info .Update this info
Contact Information
Every Life Foundation for Rare DiseasesContact: Lindsey Cundiff, Associate Director of Policy Programs
Email Address: lcundiff@everylifefoundation.org
Phone: 202-697-7273
View Advocacy and Support Website
1012 14th Street, NW, Suite 500 Washington, DC 20005
Area Served: Out of State
Map Location Advocacy and Support
Narrative
National advocacy organization dedicated to raising awareness of the need to screen, identify, and develop medical treatments and protocols to enhance the lives of those affected by rare diseases. Hosts a number of programs and initiatives to enhance education for professionals and the public, as well as outlets for personal artistic expression and connections.
Service Types
- Socialization Activities
Program Type
- Advocacy
- Support Groups
Populations Served
- Rare disorders/low incidence
Ages Served
- Birth to 3
- 3 - 4
- 5 - 8
- 9 - 13
- 14 - 18
- 19 - 22
- 23 – 59
- 60 +
Additional Information
- Fees: Free Service
