Record last updated 2025/04/09 Comment on this info .Update this info
Contact Information
Every Life Foundation for Rare DiseasesContact: Shannon von Felden, RDLA Program Director
Email Address: svonfelden@everylifefoundation.org
Phone: 202-697-7273
View Advocacy and Support Website
1012 14th Street, NW, Suite 500 Washington, DC 20005
Area Served: Out of State
Map Location Advocacy and Support
Narrative
National advocacy organization dedicated to raising awareness of the need to screen, identify, and develop medical treatments to enhance the lives of those affected by rare diseases.
Hosts a number of programs and initiatives to enhance education for professionals and the public. We have outlets for personal artistic expression and connections.
Service Types
- Self-Advocacy
- Socialization Activities
Program Type
- Advocacy
- Support Groups
Populations Served
- Developmental Disability
- Ehlers-Danlos Syndrome
- Genetic Disorders
Ages Served
- Birth to 3
- 3 - 4
- 5 - 8
- 9 - 13
- 14 - 18
- 19 - 22
- 23 – 59
- 60 +
Additional Information
- Fees: Free Service
