Record last updated 2025/04/09 Comment on this info .Update this info
Contact Information
Facioscapulohumeral Muscular Dystrophy Society (FSH)Contact: Kim Shanley, Community Engagement Coordinator
Email Address: NewEnglandChapter@fshdsociety.org
Phone: 781-301-6060
Fax: 781-862-1116
View Information and Support - New England Chapter Website
75 North Main Street Suite 1073 Randolph, MA 02420
Area Served: Southeast
Map Location Information and Support - New England Chapter
Narrative
Thank you for visiting the New England Chapter of the FSHD Society! We are here to build a local community of patients, family and friends. We help them connect and advocate for themselves and each other. Our hope for the future is to find a cure. Until then, we hope to bring a greater awareness to the community. We want to help improve the quality of life of all those affected.
Service Types
- Disability Awareness
- Family Support
- Socialization Activities
Program Type
- Advocacy
- Communication
- Education
- Support Groups
Populations Served
- Developmental Disability
- Genetic Disorders
- Hard of Hearing
- Muscular Dystrophy
- Other See Narrative
- Physical Disabilities
- Speech Impairment
Ages Served
- Birth to 3
- 3 - 4
- 5 - 8
- 9 - 13
- 14 - 18
- 19 - 22
- 23 – 59
- 60 +
Accessibility Features
- Accessible Parking
- Accessible Restrooms
- Elevators
- Wheelchair Ramps
Additional Information
- Fees: Free Service
