FSH Society Facioscapulohumeral Muscular Dystrophy Society (FSH)

Record last updated 2017/09/20 Comment on this info .Update this info

Contact Information

Facioscapulohumeral Muscular Dystrophy Society (FSH)
Contact: June Kinoshita, Executive Director
Email Address: info@fshsociety.org
Phone: 781-301-6060
Fax: 781-862-1116

450 Bedford Street Lexington, MA 02420
Area Served: Greater Boston

Map Location FSH Society

Narrative

The FSH Society, Inc., is a 501 (c) 3 nonprofit volunteer health organization for information, education, advocacy & funds for research on facioscapulohumeral muscular distrophy (FSHD) world wide. The FSH Society offers assistance to individuals, families and professionals concerned with FSHD, publishes newsletters, brochures on FSHD in Spanish and English, holds scientific and patient conferences and support groups.

Service Types

  • Disability Awareness
  • Family Support
  • Socialization Activities

Program Type

  • Advocacy
  • Communication
  • Education
  • Information/Referral
  • Support Groups

Populations Served

  • Hard of Hearing
  • Muscular Dystrophy
  • Other See Narrative
  • Physical Disabilities
  • Rare disorders/low incidence
  • Speech Impairment

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Accessibility Features

  • Accessible Parking
  • Accessible Public Transportation
  • Accessible Restrooms
  • Elevators
  • Near Public Transportation
  • Wheelchair Ramps

Additional Information

  • Fees: Free Service, Personal Funds