Record last updated 2025/09/08 Comment on this info .Update this info

Narrative

Represents more than 600 consumer and health professional organizations, working together to improve the quality of life for everyone impacted by genetics. 

This resource pulls in information from partner sites around the internet. It allows you to access all of the information, resources, and support you might need. Disease InfoSearch also gives you chances to connect with advocacy organizations, data registries, research opportunities, and clinical trials. It is a great place to learn more information about a specific disease or condition.

Just type in the name of a condition and Disease InfoSearch will find quality information from a database of more than 13,000 conditions and thousands of support groups and foundations.

Service Types

• Family Support

Program Type

• Information/Referral

Populations Served

• Birth Defects

Ages Served

• Birth to 3
• 3 - 4
• 5 - 8
• 9 - 13
• 14 - 18
• 19 - 22
• 23 – 59
• 60 +

Additional Information

• Fees: Free Service