Record last updated 2021/11/02 Comment on this info .Update this info
Contact Information
Global GenesContact: Hira Chowdhary, Senior Manager of Engagement Programs
Email Address: careaboutrare@globalgenes.org
Phone: 949-248-7273
View Information and Resources Website
28 Argonaut, Suite 150 Aliso Viego, CA 92656
Area Served: Out of State
Map Location Information and Resources
Narrative
A rare genetic disease patient advocacy organization, centered on increasing rare disease awareness, public and physician education, building community, and supporting research.
Service Types
- Family Support
Program Type
- Advocacy
- Support Groups
Populations Served
- Rare disorders/low incidence
Ages Served
- Birth to 3
- 3 - 4
- 5 - 8
- 9 - 13
- 14 - 18
- 19 - 22
- 23 – 59
- 60 +
Additional Information
- Fees: Free Service
