Record last updated 2024/10/07 Comment on this info .Update this info

Narrative

Advocates for improved access to care, diagnosis, early and innovative medical intervention, long-term lifestyle improvement, and therapeutic compliance.

As part of the 50-State Network, you have the opportunity to speak up, testify and advocate to ensure that legislation and public policy promote better access to health care. We strive to create a world in which patients know that they are not alone and that their unique perspective is informing policymakers in the creation of health policy. We do this through helping patients testify, submit testimony, write op-eds, and advocate.

Service Types

• Relationship/Friendship Support

Program Type

• Advocacy
• Support Groups

Populations Served

• Arthritis
• Cancer
• Developmental Disability
• Ehlers-Danlos Syndrome
• Genetic Disorders
• Heart Disorder
• Joint Disorder
• Physical Disabilities
• Sickle Cell Disease
• Skin Disorders

Ages Served

• Birth to 3
• 3 - 4
• 5 - 8
• 9 - 13
• 14 - 18
• 19 - 22
• 23 – 59
• 60 +

Languages Spoken

• Spanish

Additional Information

• Fees: Free Service