Record last updated 2022/09/30 Comment on this info .Update this info
Contact Information
The Marfan FoundationContact: Andrea Friedman, MSW, Client Services Manager
Email Address: afriedman@marfan.org
Phone: 516-883-8712
View Help & Resource Center Website
22 Manhasset Avenue Port Washington, NY 11050
Area Served: Out of State
Map Location Help & Resource Center
Narrative
Marfan syndrome is a genetic disorder that affects the body’s connective tissue. Connective tissue helps to hold the body’s cells, organs, and tissues together and also helps to control how the body grows and develops.
There are also several disorders related to Marfan syndrome that cause people to struggle with the same or similar physical problems, and anyone affected by these disorders needs an early and accurate diagnosis.
Service Types
- Disability Awareness
- Family Support
Program Type
- Information/Referral
Populations Served
- Ehlers-Danlos Syndrome
- Genetic Disorders
Ages Served
Additional Information
- Fees: Free Service